{"id":21188,"date":"2017-06-07T14:21:20","date_gmt":"2017-06-07T19:21:20","guid":{"rendered":"http:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/?p=21188"},"modified":"2019-04-15T18:14:21","modified_gmt":"2019-04-15T23:14:21","slug":"patient-day-2017-edwards-lifesciences","status":"publish","type":"post","link":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2017\/06\/07\/patient-day-2017-edwards-lifesciences\/","title":{"rendered":"What Happened When 60 Patients &#038; Caregivers Met for &#8220;Patient Day 2017&#8221; at Edwards Lifesciences?"},"content":{"rendered":"<p>Something special recently happened. More than 60\u00a0patients and their care partners traveled to Edwards Lifesciences, a leading heart valve manufacturer in Irvine, California, to meet each other, to share their stories and to inspire action within our community \u2013 the heart valve patient community.<\/p>\n<p>This day is appropriately called\u2026 Patient Day!!!!!<\/p>\n<p>Luckily, Edwards asked us to attend Patient Day 2017 and film the wonderful moments of this unique event that included meet-and-greets with the heart valve assembly teams, panel and group discussions, a campus and manufacturing\u00a0tour and more. My favorite part of the day was watching patients meet the Edwards employees who made their valves by hand.<\/p>\n<p>Ready to\u00a0see what happened at Patient Day?\u00a0Watch the video below\u2026<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><iframe data-src=\"https:\/\/www.youtube.com\/embed\/fvEzifVjI2I\" loading=\"lazy\" src=\"\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>&nbsp;<br \/>\n<!--more--><\/p>\n<p>Thanks to the patients and caregivers who traveled &#8211; from near and far &#8211; to participate in Patient Day. And\u2026 On behalf of our community, I want to extend a mighty thanks to the entire Edwards team for empowering the patient voice at \u201cPatient Day 2017.\u201d<\/p>\n<ul>\n<li><a href=\"http:\/\/www.edwards.com\/aboutus\/patientvoice\">Sign up now to receive information about Patient Day 2018 and other opportunities to use your voice to help other patients like you and me!<\/a><\/li>\n<\/ul>\n<p>Keep on tickin!<br \/>\nAdam<\/p>\n<p><!--more--><\/p>\n<p>P.S. Here is a written transcript of the Patient Day 2017 video:<\/p>\n<p>Ronald Young: The doctor told me that the valve was going downhill. They gave me 12 months. When you get to the stage that you don&#8217;t think you&#8217;re going to go on much further.<\/p>\n<p>Christine Rekash: I found that when I was going through my surgery and my diagnosis, there was very little information out there that was available.<\/p>\n<p>Ron Nussle: When I was first diagnosed with aortic stenosis, to be honest, I didn&#8217;t know what it was. Something I&#8217;d never heard of and all of a sudden, there&#8217;s this thing that&#8217;s ultimately going to be life-threatening.<\/p>\n<p>Joyce Shelby: I was scared. What would happen to my family? How could this happen? Why did this happen to me? There&#8217;s a sense of loneliness because people can support you, but does a person really understand what you&#8217;re going through?<\/p>\n<p>Christine Rekash: I think it has to come from within, that your life does not end with your valve disease.<\/p>\n<p>Joyce Shelby: This is part of who I am and what I&#8217;ve been through, and this is an opportunity to share stories and also to help others.<\/p>\n<p>Mike Mussallem: Patient Day really is transformative for Edwards. It&#8217;s a chance for us to think deeply about what do patients care about, and so when we get a chance to learn more specifically from them, not their doctors, not their hospitals, not their insurers, but from patients themselves, that there&#8217;s a compass for us to think about where we go next.<\/p>\n<p>Christine Rekash: Take a new lease on life, become involved with your community.<\/p>\n<p>Joyce Shelby: That&#8217;s what community is about, something that you can share. That means so much to me. There&#8217;s nothing that you can put on that. There&#8217;s no price tag.<\/p>\n<p>Rose-Marie\u00a0Ann Scheel: I have a feeling of kinship with these people. We&#8217;ve traveled the same path. We are, in fact, a family.<\/p>\n<p>Mike Mussallem: \u00a0One of the most meaningful things that gets to happen on Patient Day is when a patient gets to meet the sewers, the people that were involved in the construction of their valve, in person.<\/p>\n<p>Ron Nussle: \u00a0Before the procedure, I couldn&#8217;t walk across the street. You turned my life around. What you folks have done, what you&#8217;ve put together \u2013 again, you think of it just as an object, but now the object has a face. You&#8217;ve done a great job. Thank you so much.<\/p>\n<p>Socheata Iep: \u00a0 I got the chance to meet my patient, and it made me feel amazing and proud of what we done, how important what we do is, not just what it&#8217;s work saving life.<\/p>\n<p>Mike Mussallem: \u00a0Nothing is more incredible. To have a patient put their arm around you and say thank you, I&#8217;m here because of you, then I think that stays with you really for a lifetime.<\/p>\n<p>Ronald\u00a0Young: \u00a0Twelve months ago, I wouldn&#8217;t have thought I would&#8217;ve been here. I&#8217;m here. I feel great. Life is wonderful. All I can do is thank Edwards, and the doctor, and everyone else that looked after me.<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":21195,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[40],"tags":[],"class_list":["post-21188","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/21188","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/comments?post=21188"}],"version-history":[{"count":0,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/21188\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media\/21195"}],"wp:attachment":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media?parent=21188"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/categories?post=21188"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/tags?post=21188"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}