{"id":19984,"date":"2015-09-02T15:20:43","date_gmt":"2015-09-02T20:20:43","guid":{"rendered":"http:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/?p=19984"},"modified":"2018-08-23T14:29:18","modified_gmt":"2018-08-23T19:29:18","slug":"2015-edwards-patient-day-video","status":"publish","type":"post","link":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2015\/09\/02\/2015-edwards-patient-day-video\/","title":{"rendered":"What Happened When 100 Heart Valve Patients &#038; Caregivers Met for &#8220;Patient Day&#8221; at Edwards Lifesciences?"},"content":{"rendered":"<p>When I started this website nine years ago, I had a dream. My dream was that someday heart valve patients would connect in real-time to share their experiences as a community.<\/p>\n<p>Well, that dream transformed into reality when Edwards Lifesciences, a leading heart valve manufacturer, volunteered to host \u201cPatient Day\u201d at its headquarters in Irvine, California. To capture the special moments of this event, Edwards hired our team to film this video.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><iframe data-src=\"https:\/\/www.youtube.com\/embed\/xk1ViU6w3QU\" loading=\"lazy\" src=\"\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p>On behalf of the patients and the caregivers of HeartValveSurgery.com, I want to extend a mighty thanks to Carla Asta, Amanda Fowler, Katrina Headle, Sarah Huoh, Mike Mussallem and the entire Edwards team for empowering the patient voice at \u201cPatient Day\u201d.<\/p>\n<ul>\n<li><a href=\"http:\/\/www.edwards.com\/patient-events-and-opportunities-registration-form\">Get updates from Edwards about future events like Patient Day.<\/a><\/li>\n<\/ul>\n<p>Keep on tickin!<br \/>\nAdam<\/p>\n<p><!--more--><\/p>\n<p>P.S. For the hearing impaired members of our community, I have provide a written transcript of this video.<\/p>\n<p>Max Page: If I had to give advice to another ten-year old my age that is just about to go through heart surgery, I would say that you\u2019re going to be scared and it\u2019s going to hurt, but in the end you\u2019re going to feel better. You just have to trust everybody because you\u2019re doing the right thing.<\/p>\n<p>Mike Mussallem: We decided to take the step here and do a Patient Day. The idea of bringing a whole group and allowing them to meet each other, share experiences, think about what could and should be better, and help patients find their voice, this is something that we thought sounded really interesting and inspiring. So, we wanted to try it.<\/p>\n<p>Todd Maser: They [Edwards] asked me if I wanted to come out. It was a unique opportunity to say \u201cThank You\u201d to everybody who essentially saved my life. It was incredibly meaningful to come out here and meet everybody from Edwards, the amazing work they did for me and my family.<\/p>\n<p>Amanda Fowler: Today, we have a lot of people coming together. We have Edwards patients, we have non-profit organizations that we support through our foundation, people who are already out there using their voice to change lives for other heart valve patients.<\/p>\n<p>Bray Patrick-Lake: The patient voice is more powerful than I think any of us know. At first we\u2019re dealing with our own health crisis and trying to take care of ourselves and then when we get to the end of it, we want to actually help others.<\/p>\n<p>Jennifer Page: When I heard about patient day, I was just honored that we got to be a part and represent the pediatric voice. Max is ten now and he\u2019ll soon age out and join the adult side, so to represent that community was quite an honor.<\/p>\n<p>Max Page: They were also generous enough to let me come to their campus and learn the history about Edwards. It was just amazing to see what everything inside of me is made of and how it\u2019s made. It\u2019s just amazing.<\/p>\n<p>Todd Maser: It\u2019s still surreal. When I met them it\u2019s hard to really explain what it is to meet the people who made the device that saved our lives.<\/p>\n<p>Stewart Gully: The entire laboratory came up behind us and we all cheered and laughed. It was a dynamic experience and a little tear-jerking I might add.<\/p>\n<p>Joseph Harlow: That\u2019s what this world should be about, people helping people. That\u2019s what I think. They\u2019re doing a fantastic job out there. I wish I could go through that whole lab and meet them, but they all came out. I don\u2019t know why, but I blew them all kisses because I love them all.<\/p>\n<p>Max Page: I met a lot of people with the same problems as me. It\u2019s just comforting that they\u2019re living and thriving a great and hopeful life.<\/p>\n<p>Susan Strong: I met the team that sewed my heart valve and I said, \u201cCan I hug you?\u201d I gave them all a hug and one lady was holding me tight and I was crying and she said, \u201cI can feel your heart.\u201d It was amazing.<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":20025,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[40],"tags":[],"class_list":["post-19984","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/19984","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/comments?post=19984"}],"version-history":[{"count":0,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/19984\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media\/20025"}],"wp:attachment":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media?parent=19984"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/categories?post=19984"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/tags?post=19984"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}