Carol Jackson posted a note for Susan that says:
Susan,
Glad to hear you are doing so much better after your recent lung problem.
You are a trooper! I remember how you saw Jim Jones, Ernie, Dan and I through our surgeries in Oct. And Nov. and gave us so much encouragement. I hope all of
Us have given you a lot of encouragement, support and prayers through your journey. You are now on your way to Zumba!! After 9 1/2 months I am doing great but still need to lose weight which is very difficult to do. Take care and God bless.
Susan Smith Carol, I had the easy part, you all had the hard part. Now I appreciate all the encouragement I have ... Read more
Susan Smith Carol, I had the easy part, you all had the hard part. Now I appreciate all the encouragement I have received and find it really is a team effort. I am glad you are doing well and the weight issue is always a stumbling block. Don't give up. Have a great day, dear friend.
On July 25, 2014...
Jim Jones posted a note for Susan that says:
Susan:
Thinking of you this morning. (You weren't at the Zumba class with Gabi, were you?) How did you make out yesterday? All the best.
Susan Smith Jim, LOL no I wasn't as brave as Gabi. She is marvelous. I made out just fine. The fluid is gone ... Read more
Susan Smith Jim, LOL no I wasn't as brave as Gabi. She is marvelous. I made out just fine. The fluid is gone and today I feel great. Thanks for thinking of me. Now I am just waiting to find out if I am going to get more fluid. Hope not. I am about to go out on a photo shoot. I am a shutterbug and go exploring for interesting subjects. Have a super great day. Your friend
On July 23, 2014...
Lynn quast posted a note for Susan that says:
I am wishing you resolution on this effusion stuff!!! I feel sooo much better after my left one was drained and am hoping no recurrent fluid will come back. Make sure someone runs tests to make sure it's nothing but from the surgery!!! I'm with you all the way on this!!! It's not fun and makes recovery harder. Keep us posted please. My depression and anxiety went away when they drained the effusion, but I'm not sure if that was a coincidence. Not getting enough oxygen can cause many problems though! Keep hanging in there Susan !
Susan Smith Lynn, thanks for the good words. THe doctor is running test on the fluid. The first episode fluid d ... Read more
Susan Smith Lynn, thanks for the good words. THe doctor is running test on the fluid. The first episode fluid draining took place in the hospital and the dr. only check the fluid for cancer and that was negative (thank goodness) The current lung dr is interested in finding out why the right lung and not the left one. I just don't want it to come back. Interesting about the depression and anxiety going away after the fluid is gone. Hope that happens for me too. God's blessing to you from me.
On July 23, 2014...
Gabi x posted a note for Susan that says:
Yes Dorothy, I am right with you on the gold bullion road. Lets wear our red sparkly shoes and race one another to visit the Wizard of OZ. Hang on I already in the land of Oz he must be around here someplace. Are you ready, set, go!
Susan Smith Gabi, the Wizard of Oz is behind that curtain, twirling those knobs and pushing those levers. Yes I ... Read more
Susan Smith Gabi, the Wizard of Oz is behind that curtain, twirling those knobs and pushing those levers. Yes I am ready to join the race. Are you recovered from your Zumba adventure? Hope so dear heart ....ready, set......go! We are off and running. Thanks Gabi you are the best. Love u
On July 23, 2014...
Terrie posted a note for Susan that says:
Howdy Susan.
Thought of you this morning as I sat talking myself out of getting onto my recumbent bike for a little light exercise.
I have been avoiding it as afraid to push my heart into overdrive since it continues to be hot and muggy here in Calif.
So I thought of you and your "Lungs" and all you are facing right now to try to get things going better with your recovery. Realizing I had no excuse!
So I said to myself "Terrie, you need to get on that bike as you have no excuse for not making an attempt at something that will maybe help lose a few more lbs. before surgery and make your legs stronger and give better support to those knees of yours that have been missing my 5 mile bike rides around the park.
So I popped in a movie "Pride and Prejudice" one of my favorites and said "Tally Ho! these 5 miles indoors are for my heart-sister Susan who will hopefully find out tomorrow that her lungs are going to be fluid free so she can continue moving forward with her recovery.
You see I realize I am given a gift of still being able to exercise safely up until my surgery if I am lucky and I shouldn't take that for granted.
So thank you for being the shining star in the distance of my thought process to do something positive.
I burned 177 calories in the 37 minutes it took to cycle and I was entertained by a great movie.
I will pick another movie tomorrow and set myself up for another 5 miles a goal I want to keep until I go for surgery if at all possible. It isn't much compared to what I used to do but it is something!
So here is looking for good news for you at the Drs. office and that your lungs can be in great shape soon!
Sending love and prayers.
Susan Smith Dear Terrie, I am on my way right behind you as I now feel much better. I lost 50 pounds before my ... Read more
Susan Smith Dear Terrie, I am on my way right behind you as I now feel much better. I lost 50 pounds before my surgery and glad I did. I am now losing inches and maintaining my weight. I am down 4 sizes in my blouses/shirts and 4 sizes down in the pants/slacks. I just cut portions sizes and ate more veggies/fruit and protein. Keep it up Terrie you are doing just great. Appreciate the love and prayers always,
On July 21, 2014...
Terrie posted a note for Susan that says:
Susan,
Sorry to hear about the fluid build up.
Good to know they know what is going on and are going to get rid of the fluid.
Perhaps this will be the last obstacle in continuing on with recovery. Let's hope and pray so. Saying prayers as I hit the sack tonight for you and that this makes a big difference in how you are feeling. Keep your chin up Lady. We are ready to hear from you soon that things went well. Take care-
Susan Smith Thanks Terrie, I am expecting to report good results and feeling much better.
On July 21, 2014...
Gabi x posted a note for Susan that says:
Oh Susan, I am getting a pic of you speeding along the yella brick road in a wheel chair and seeing the turn off to Jurrasic Park, that is not the way, you need to watch out for the Thoracic Park sign! Remember Strawman had no brain, Tinman no heart and Lion was lookin' for courage. You my dear have all dez gifts in abundance. Good luck for Thurs - its no biggie just a needle in the back, I didn't even have knockout needle. Its just another thing to get done and we never, ever get it all done. Just keep tickin off your to do list! Lotsa love.
Susan Smith Dearest Gabi, LOL Jurrasic park or Thoracic park......who knows anymore. I am choosing that the yel ... Read more
Susan Smith Dearest Gabi, LOL Jurrasic park or Thoracic park......who knows anymore. I am choosing that the yella brick road is really the gold brick road leading me to good health and that you are joining me. I am looking forward to feeling better after Thursdays procedure. Lotsa love right back to you.
On July 19, 2014...
Ginger (in the Land of Oz) posted a note for Susan that says:
Susan,
sending many prayers for you that what has developed will clear up and you will indeed be home before long.
Living in Oz, I am familiar with the Yellow Brick Road and can assure you that despite intentions to harm, you are indeed on the right path. Great your PCP sent you to the pulmonologist so you have a lung expert caring for you!
Wishing you all the best with prayer and love,
Susan Smith Ginger Thanks for the love and prayers. They are vital to us all. I guess my only words are that we ... Read more
Susan Smith Ginger Thanks for the love and prayers. They are vital to us all. I guess my only words are that we must pay attention to our body and what it is telling us. SOB means something is amiss. God's blessings to you.
On July 19, 2014...
Barbara Colvin posted a note for Susan that says:
Hi Susan -
As the hymn goes, this world is not your home, you are just passing through. Your treasures are laid up somewhere beyond the blue. You will continue to be in my prayers. I am praying that your lung problem is something that is treatable and reversible. Keep leaning on those everlasting arms.
Susan Smith Thanks Barbara. God is good and I know he has me in His arms.
On July 18, 2014...
Terrie (again) posted a note for Susan that says:
Susan-one more quick thought before I head off to bed tonight.
I am reminded of a famous Quote of May 13, 2014 which reads "This is not Life threatening, just a step back. SHE IS A TOUGH OLD BIRD"!
It applies to you today sweetie!
It is a quote from that day by your Son,
JEFF!
We are here for you heart-Sister
Susan Smith LOL, I guess he remembers us calling Nan (my dear mother-in-law) a tough old bird. She with Jesus now ... Read more
Susan Smith LOL, I guess he remembers us calling Nan (my dear mother-in-law) a tough old bird. She with Jesus now and it is my turn to be the tough old bird.
On July 18, 2014...
Terrie posted a note for Susan that says:
Susan- Bit windy that brick road you are on. Think maybe Monday you might get news that it is time to continue down that path of recovery. So You have added prayers with the rest of us that things turn for the better on Monday and that you can continue on without further lung problems.
Having apprehension recently and writing about how you were feeling lets us know that the emotional road back is just as difficult at times as the medical. When you have them together it is going to take all your strength and resolve you have already shown yourself and others that you have to keep on going so remember how far you have come and what help you have been to others as well and know we are all here hoping and praying that things turn around for you soon. Glad you are seeing a lung specialist to make sure they get a handle on this as well.
Take care and keep us posted dear Lady. With this many prayers and well wishes headed your direction you just can't help but get better soon!
Love, Terrie
Judi Butler posted a note for Susan that says:
Susan, my dear -
I am so very sorry that you are having a hard recovery. I do believe that you are right about being alone after the help. It all sort of settles around you. I have been told by many of my cardiac rehab partners that the build up, surgery and then recovery fads down to just me. It is daunting. They report not to be too hard on yourself and to take special time for you. We had become a special group and I miss them. That was a void. I griped about getting up early but miss it.
This is a new season of our life. I am still writing in my heart journal. I don't know if writing would help you. Do you write poems? I write prayers too. Spill it out to God.
And keep sharing with us. We like to hear from you.
Susan Smith Dear Judi, your note is very helpful you explained your feelings very clearly and they do match up w ... Read more
Susan Smith Dear Judi, your note is very helpful you explained your feelings very clearly and they do match up with mine. I do pour my heart out to God and I know He hears me. I am comforted. Thanks for sharing and caring.
On July 18, 2014...
Gabi x posted a note for Susan that says:
C'mon Susan you have shown us that you can handle very challenging hiccups. Don't think too much - like the Nike ad 'just do it' and just do it and do it and do it! Do it OK? I am thinking of you as you do it!
Susan Smith Yes Gabi, I will do it. Lots of love from me as I do it.
On July 18, 2014...
Linda H and Elsie posted a note for Susan that says:
Sorry to hear of the newest problem. I will be keeping you in my prayers. Hope things turn around for you soon.
Lots of hugs.
Susan Smith Yes it does. The hospital where I had the valve surgery has over door (well most doors) the following ... Read more
Susan Smith Yes it does. The hospital where I had the valve surgery has over door (well most doors) the following phrase: "Hope at every turn".
On July 18, 2014...
The Oldest Child posted a note for Susan that says:
My 85 year old father underwent AVR on April 3, 2014. He's has pleural effusions, drainage, pacemaker put in and a UTI. It's been a journey. I appreciate reading your entries. They let me know that this experience is not unique, just tough. Good luck to you and I hope you are back to new very soon. Now we are waiting to see if blood thinners are needed due to a fib. Pray that they are not. Bless you and thanks, again.
Susan Smith You are in the position that my son, Jeff is in, except he is the only child. He has been my guardia ... Read more
Susan Smith You are in the position that my son, Jeff is in, except he is the only child. He has been my guardian angel and my right arm. I am sure your Dad feels the same way about you. My son has his own family and so I am ever mindful that they are his priority. That is the way it should be, but he has and is there for me. I will be praying for your father and if he needs blood thinners, I hope they will put him on Xeralto. Not Coumadin or Warfarin. Xeralto needs no blood test and no diet changes. That is what I was on, because I had Afib after the surgery. I am off it now. What is hard for me to handle is the water pills. Please let you father know how important he is to you the family. I used to call my mother-in-law, "a tough ole bird" said with much love and affection and she would laugh and agree. Now I am the "tough ole bird" and I laugh when I think of it. Both you and your dad are in my prayers. God is watching out for everyone on this website,.
On July 17, 2014...
Gabi x posted a note for Susan that says:
Sorry I took it for granted you remembered Adam went through a dark patch. Knowing this helped me realise I was not so weird. Russ Harris says 'breathe into those feelings, open up and make room for them. Acknowledge to yourself 'here is anxiety' this feeling is normal. It is what everybody feels in a challenging situation with an uncertain outcome' Don't try to push them away or get rid of them, just acknowledge their presence and don't get attached to them, treat them like passing cars outside your house you don't have to rush out and see what they are. Just let them be and breath in and out. This model is called Acceptance and Commitment Therapy. Or ACT for short. Anyway anyway your own therapist may use a different model for you. When is your appointment? Please let us know Susan darling, thinking of you with love.
Susan Smith Never be sorry. I did forget and you brought all back to me and I am grateful. Susan x
On July 17, 2014...
Bob Stoltz--pcstoltz@yahoo.com posted a note for Susan that says:
My name is Robert Stoltz, and I would like to share with you my recent experience with Open Heart Surgery. I will be 82 years old this June. Thanks to my recent surgery, I can look forward to this birthday, and perhaps many more. My Aortic valve was replaced with 23 mm Edwards magna ease aortic valve prosthesis, My tricuspid valve was repaired with a 36mm ring and my left atria appendage ligation with a 35mm atria clip and three coronary by-passes. This was done on Oct. 19, 2013 at Greenville hospital in Greenville SC.
I am thankful to God that I have never been sick to any degree in my life. I have lived a wonderful life and am happy with the pleasant peace of mind that comes with the aging process.
I was diagnosed with Aortic Stenosis in 2002, but I was told by my doctor not to worry unless I developed symptoms. I had no symptoms I never had any pain so I worked out in the gym daily, jogging, bicycling, lifting weights etc. I kept track of the stenosis with echocardigrams. My aortic opening area had gone from 1cm opening in 2002 to .6cm opening in 2011. It stabilized and did not change from here, and I was very happy about this.
I took my annual physical in July of 2013; all of my tests were great for a man of my age. My doctor said whatever I was doing to keep on doing it!! He cautioned me to be aware of any symptoms that the Aortic Stenosis might cause and to notify him if I noticed any. The symptoms I was looking for were, dizziness, fainting, chest pains, shortness of breath, fatigue etc. I never developed any of these!!
On the night of August 15 2013 (Three weeks from my physical in July), I could not go to sleep. I told my wife I would like to take a sleeping pill (Ambiem) She said: “No don’t take it,” but I did anyway. I got worse, severe anxiety developed; when I started to walk I became very tired. My wife said,” “ I am going to take you to the emergency room”. I refused to go. Things got worse, and I relented and finally said, “let’s go”. We drove 100 miles to Asheville NC, to the VA Emergency Room. After many tests and much anxiety they told me my Aortic valve had failed, and that ejection fraction (Measurement of blood flow force from the aortic valve) was down from my last reading of 60% to 20%!! I explained that I hadn’t experienced any symptoms prior to this. They informed me that one of the symptoms of a complete aortic failure is SUDDEN DEATH!! That got my attention right away.
We returned to our home and I started to check on the Internet for Surgeons who had an excellent record in this field. The name of Dr. Barry Davis surfaced to the top of my list. He was located in Greenville SC, about 140 miles from our home. I called him and was told to get all of my records, echo’s etc together and mail them to him. He said he would set up a consultation meeting with me when they arrived. I decided to get another surgeon also, just in case Dr. Davis could not do the operation. I contacted a surgeon at the Sanger Hospital in Charlotte NC. He told me the same thing, get records together and send them to him.
It took me four miserable weeks to get all of this together and send the information to both places. Dr. Davis notified me he had scheduled a consultation meeting with me on Sept. 15th 2013. At this meeting he reviewed the different procedures available for an aortic valve replacement. The catheter method (Minimum invasive procedure) and the open-heart procedure. He mentioned drug programs etc. also. This was my decision, so I decided on the time proven procedure of open heart, although the thoughts of it frightened me. Catheterization and pre- op was scheduled for Sept. 28, 2013. The catheterization and an was echo done through my stomach revealed that the Aortic valve had to be replaced, the tricuspid and the mitral valve needed to be. Three of the coronary arteries needed repaired with by-pass procedures also. I asked if this all could be done at the same time, and he assured me it could. The operation was set up for Oct. 9, 2013. I remember seeing my wife and all of my friends at my bedside, as I was put on the gurney and moved to the operation room. I had a very strong feeling that I would never see any of them again on this earth. I remember seeing the bright lights over my head in the operation room, and a lot of people in white clothes and masks. I felt like I was moving into a strange new world, where everything was white, I was walking along side of a river that was partly frozen over, and I looked down at my feet and I could see the slushy snow coming up between my toes. I looked out at the frozen river and I saw an old man wearing a white coat and motioning for me to come over and get on his ice-boat. The last thing I remember was giving him the bird (sticking up my middle finger) I wasn’t about to get in that boat!
The realty was that the surgeon had completed all of the surgery at this time and I was sent stabilized to Intensive Care on Oct 9, 2013. At 2:00PM. Dr. Davis reported to everyone that everything went Great! The operation was complete, everything done as planned. Susan, Don, Billy Raye, Jane, Charity and Peggy left the ICU around 6:00 PM.
The next thing I remember, I could hear a humming sound, and everything was pitch black. I had a feeling that someone was there, but I couldn’t see anything, a feeling of PRESENCE flooded my body, someone was with me I knew, but I couldn’t see. My wife and friends told me later that they were there at this time Oct. 10, 2013, and I was in Intensive Care. I was intubated and stabilized, but I did suffer from low blood oxygen and was ventilator dependant due to respiratory failure. I then experienced cardiogenic shock (Cardiogenic shock is when the heart has been damaged so much that it is unable to supply enough blood to the organs of the body) I was told that 5 years ago everyone who experienced cardiogenic shock died but with new procedures developed since, I had a 50% chance of survival. A New procedure was used to maintain my blood pressure called pressor support (This is a method of using adrenaline like drugs to maintain my blood pressure). They managed to wean me from pressor support, and. I was extubated (tube removed from trachea) on October 10, 2013. I talked to Peggy and friends in Intensive Care, and we all felt good that things were OK. They all left me, feeling well that I had made it!
My chest was sore, my throat was sore and my eyes ewere dry but I felt OK. I was able to joke around with everyone before they left.
On Oct. 11, 2013, after trying to swallow some applesauce, I choked and couldn’t breathe. I experienced respiratory failure again and had to be reintubated , my kidneys started to fail at this time also. They tried to unload the pressure on the right side of my heart to improve my blood pressure. I was started on broad-spectrum antibiotics. My kidney function stabilized, but I was kept on antibiotics for pneumonia. I was extubated on Oct 12, 2013, and was kept in Intensive Care. On Oct. 13, 2013 I was taken off the antibiotics (vancomycin) and put on a vibrating bed for secretion clearance. I was sent to a private room. I had a re-bronchoscospy and found to have trachobronchitis and pneumonia. I was unable to swallow or eat or drink. On Oct 14, 2014 It was decided to have a percutaneous endoscopic gastronomy tube placed.(This is when I started to get nourishment from an IV looking bottle which metered the correct amount into my stomach as scheduled). On Oct. 15th 2013 they discontinued the antibiotics Zosyn and Cipro, I could not swallow, so Language pathology was brought in and I was given tests that confirmed that I had severe dysphasia (Unable to swallow due to absent epiglottis deflection.) On Oct. 16 2013 Nephrology was called in for my acute kidney failure. At this time I experienced a very painful aspiration whereby I lost consciousness. On Oct 17 2013 my kidneys stabilized, creatine come down from 2.0 to1.4. On Oct 18 2013 my foley (catheter) was removed and I was prepared to go to floor 4D for cardiac rehab. I had postoperative anemia and postoperative delirium. I suffered this delirium Oct 18th and 19th. I was crazy, living in a twilight world, where everything was real and strange. I could see buildings with mortar seeping from the bricks, I felt like I was on a large boat moving through a strange city. This was not like a dream because it seemed like I was actually living everything in some kind of reality. My hallucinations were very real and sounds, colors and smells were intertwined in them. Peggy said I was talking “Crazy” at this time. I said mean things to her that I do not remember saying, so I must have been crazy. Neighbors, Don and Susan picked up my spirits by talking about things I was familiar with.
On Oct. 20 2013my heart was found to be in junctional-atri fibrillation rhythm. Carolina Cardiology was called to determine if I would need a pacemaker. Small wires were imbedded into my heart for this, if needed. It was determined that I did have chronic afib. Cardiology decided not to proceed with any intervention at this time.
On Oct. 21 2013 I was given a barium swallow test and it was determined I had severe dysphasia with silent aspiration. My tube feeding was to continue and I was to have NOTHING BY MOUTH until further notice. Gosh, this was disheartening to me.
On Oct 22, I was notified that the bronchial washings they had submitted for analysis returned POSITIVE FOR TB! Wow, I couldn’t eat I couldn’t walk, and now I had to wear a mask for my breathing. I was put in a pressurized room and all visitors were restricted. To make matters worse, I hadn’t been out of bed since I was admitted to the hospital, I couldn’t stand up-, my legs looked like tooth picks, It was at this time I learned what depression was, but there was more to come.
On Oct 24 2013 I was thought to have Thrombocyclopenia (TCP) as my platelet count was low. I had many tests, x-rays etc. Chest x-ray was done Oct. 29th, 2013 revealed minor pulmonary problems, Cardiac telemetry exhibited atrial fibrillation at the rate 60-s 70-s
On Nov 4 2013 all tests etc were done, and the TB tests were found to be false positive readings. Finally I could be released to REHAB. I was carried to a wheel chair, and put in a waiting bus van. I was taken to rehab 90 miles away. I couldn’t eat, I couldn’t drink, I couldn’t walk and I could barely talk, but I was HAPPY! I was going to get to stand up- and walk, Wow!! Maybe I could be able to eat again. I was actually excited that I was leaving the hospital.
The professionals at Rehab were wonderful. The doctor told me he would have me eating if I followed his instructions. I had to do exercises to strengthen my swallowing muscles; he showed me how to do it. He also stimulated the muscles with some electrical current.
The doctor had me eating in a week. He started out with one drop of food and water on my tongue at a time and I ended up eating McDonalds Big Mac’s in a week. Life was wonderful again.
The trainers started by making me take one short step at a time and I was walking one half a mile in a week. I was released to go home from Re-hab after two weeks.
I am now back to my old self as my wife calls it, doing all of the things old people do Walk around the foothills of the mountains, go to the gym and work out, eat at nice restaurants with our friends. Once again we can sit on our deck together in the morning and watch the sun come up as we drink our coffee, admire the blue Cyprus trees, and look at the mountains shaded in the early morning fog. My wife is so glad I am home again, our dog Scruffy, just can’t get enough of me, and she follows me everywhere. To make a long story short --I AM VERY HAPPY!
I am also thankful that I had full support of our neighbors and friends. Billy Raye, Kenny Schulte. Susan Todd, who took time off from her job as a schoolteacher to be with my wife and me during the operation, and her husband Donald brought my wife to visit with me every day for almost a month. (A 100-mile trip) Mr. Nathan Fulton and his family (Father Wylie and Mother Lou) visited me and brightened my sprits. Jane Fulton (Nathan’s wife) helped my wife by driving her to the hospital, cooking meals etc. during these difficult times. Mr. Jim Bennett kept our property clean by mowing the lawn and blowing debris from our yard. He and his wife Debbie visited me and brought good reading material to help pass the time. All of our neighbors, Ray and Donna Green, Bob and Robin Street, Mrs. Fred Street, Peggy and Tim Brackett and others too numerous to mention visited and gave their support. These friends gave me a good reason to get well so I could be part of their lives once again. I am so grateful to all of them.
Bob Stoltz
Susan Smith Bob may God bless you and your family. Thanks for sharing.
On July 17, 2014...
Jim Jones posted a note for Susan that says:
Susan:
Sorry to hear this news. please keep us updated. This healing sure does have some up and downs to it. I will keep you, as always, in my thoughts.
Re: anxiety I have found that relaxation apps are really helpful. A popular one is calm.com. Also, gentle cardiac yoga has helped me. Both techniques quiet the mind. All the best.
Susan Smith Jim, the ups and downs are truly rolling out. Now I am facing fluid in the right lungs again. I went ... Read more
Susan Smith Jim, the ups and downs are truly rolling out. Now I am facing fluid in the right lungs again. I went to work today out of just plain stubbornness, but it was a real effort. Monday is lung doctor day. I will get through all of this "stuff", especially with the help of my heart valve friends.
On July 16, 2014...
from Gabi with love x posted a note for Susan that says:
Yeah Susan, sorry to say but these feelings all sound perfectly normal to me. With me it was the dark moods and feeling that I would never be well again. It affects us all in different ways. I mean how can we go through all that trauma and expect to feel the same? Good for you to see a therapist. It is hard work but worth it. There is free help on line BTW. If you feel like checking out Dr Russ Harris on mindfulness. Reading can be a bit overwhelming, but there are videos and audios on Russ's website to absorb stuff in a passive way. T
his info is not to say you should do this, I am merely sharing what helped me. So no pressure at all puhleeze! Thinking of you with all the love in the Universe and holding you up for a blessing.
Susan Smith Gabi, thanks for the info. I will be checking out dr. Harris website. You are a dear ( not a deer). ... Read more
Susan Smith Gabi, thanks for the info. I will be checking out dr. Harris website. You are a dear ( not a deer). Everyone at work keep saying don't you feel better, but sometimes I do and sometimes I don't feel better. Love you right back.
On July 16, 2014...
Ann Jackson posted a note for Susan that says:
Hi Susan! I just went back and read your journal after seeing your name in the newsletter. Congratulations on your fantastic recovery! It has been over 3 years since my surgery (same as yours) but when I think about it, the experience seems like yesterday. Your words about placing yourself in God's hands and having faith in your doctors and self is so true!! My recovery was rocky, and I did have those feelings of depression and anxiety. Also feelings of disbelief about what a major surgery we have been through. But thankfully I remembered some of Adam's experiences and knew that a gamut of emotions is possible and normal after that ordeal. Just give yourself time (like a year) talk to others, and you will get past it. I will be praying for both your physical and emotional recovery.
God bless you
Susan Smith Thank you Ann for reminding me of what Adam's journey was like for him. He did go through the ups an ... Read more
Susan Smith Thank you Ann for reminding me of what Adam's journey was like for him. He did go through the ups and downs of the apprehension, etc.. He went to cardio exercises and made it through. I had forgotten his experiences. So you went through this too. Obviously you have gone past it, but it still can be overwhelming. God bless you for sharing.
On July 16, 2014...
Ralph posted a note for Susan that says:
Hi Susan,
I am about 2 months after surgery. I found working part-time to be a big lift after surgery, and the cardiac rehab is really helping. It is great to get encouragement from the Nurses and the other heart patients. I did have some afib issues early on, but hopefully that is behind me. I pray the Lord gives you grace and peace.
Susan Smith Ralph , yes working part time is good and that is what I will do. My usual schedule is 1-5 Monday - ... Read more
Susan Smith Ralph , yes working part time is good and that is what I will do. My usual schedule is 1-5 Monday - Friday. Thanks for the prayers, they are always needed.
On July 16, 2014...
Tom in Missouri posted a note for Susan that says:
Susan,
So good to hear that you are physically do so well. I can't comment on the AA. Occasionally there are momments of feeling in the dumps, but then I think about how my family would be w/o me here.
Five months at work and the #1 question that I get is "do you feel better". It is probably disapointing when I reply no, since I never felt bad prior to surgery. It was do it or risk checking out way too soon.
Anyway, take care.
I don't check the journal as frequntly anymore, but I enjoy it when I do. It is so good to hear how the class of early 2014 surgery is doing.
Susan Smith Yes that is the same question I get at work. I did have some symptoms before surgery, but I really do ... Read more
Susan Smith Yes that is the same question I get at work. I did have some symptoms before surgery, but I really don't feel better. Thanks and God bless you Tom.
On July 16, 2014...
Gary posted a note for Susan that says:
Hi Susan I have experienced the same feelings. I have never been one to stress things out, it took me completely by surprise. The feelings come out of the blue, no triggers or patterns. I usually just go out and take a nice walk or go to the lake and just take it all in. The feelings pass I move on. I have done some research and it seems this is very common post op so don't worry to much about it.
Gary
Susan Smith Gary, thanks for sharing your experiences with AA. I have gotten in my car with my camera and driven ... Read more
Susan Smith Gary, thanks for sharing your experiences with AA. I have gotten in my car with my camera and driven around. Took some pictures and then came home. It chased most of the bad feelings away, but they do come back. Gary keep on keeping on.
On July 16, 2014...
Linda H and Elsie posted a note for Susan that says:
Hey Susan, Just remember you and all of us have put our bodies thru a very tramatic experience. It is something ;you will never forget. Things will get better, it takes a good year or two to get over. I still have nights where I cant get to sleep. I just get up and play some solitare. That usually helps. I even still have some pain on the incision It just feels like a tighting up, I have gotten use to it, but sometimes it annoys me, and I am 22 months out. The positive thing is we all are still alive and blessed
Susan Smith Linda and Elsie, Bossie and I fighting the good fight. I haven't been able to sleep all night in my ... Read more
Susan Smith Linda and Elsie, Bossie and I fighting the good fight. I haven't been able to sleep all night in my bed yet. I start off there and then wake up about 2 to 3 hours later and can't go back to sleep in the bed. I get up and sleep the rest of the night in the Lounge chair. I guess the incision issue will always be there, but it doesn't have to rule our lives. Right. We are ALL blessed to be alive and kicking. Thanks for reminding me of the real blessing.
On July 16, 2014...
Terrie posted a note for Susan that says:
Hello Susan.
Was happy to read how well you were doing and sorry for the AA you are experiencing.
I know it is bad enough experiencing the AA prior to surgery and can imagine that afterwards it must be pretty common, especially as you say who are alone or mostly alone during the time of recovery.
I hope you will find some help as well as input from our community as I have read many share the same feelings you are experiencing and hope they reach out to you soon.
I am alone daily now and my husband travels time to time. It isn't easy as you have too much time to think and I think the fact you are still recovering has a lot to do with it.
I am glad you are back to work and hope you don't overdo it as I am sure you must be still building up from having the surgery not that long ago.
I hope things get better for you soon Susan. You have made so much progress and I have enjoyed reading your posts.
Take care! Keep posting so we know how your are doing.
Susan Smith Thanks Terrie, you are special. To much time and to much to think about. I much prefer to be busy. M ... Read more
Susan Smith Thanks Terrie, you are special. To much time and to much to think about. I much prefer to be busy. May we both take care . God bless you.
On July 16, 2014...
Carol Jackson posted a note for Susan that says:
Susan,
I just reread your July 8 and July 16th entry. It sounds like you are well on your way to recovery. That's good that you could go back to work part-time to kind of get back into the swing of things. Even after 9 months post op I still sometimes feel very sad.... I definitely do better when I am with people and busy doing something and getting some exercise. It is good to stay in touch with people on this site since these are the only people who truly understand what you have been through. Hang in there.
On July 16, 2014...
Ruth Valenzuela posted a note for Susan that says:
Oh, I hate hearing about your AA. You have been such an encouragement to me. I will be praying that your AA passes and soon. Maybe you need a med to help you with that. I know Xanax works for me when I feel anxious. May God multiply his peace unto you.
On July 16, 2014...
Meredith Bray posted a note for Susan that says:
Yes. I will absolutely stone still and listen to my body and freak out if I hear or feel something different. I've found that I'm happier when I am busy/scheduled.
Going back to work sounds delightful. Mine doesn't start back up for a few more weeks, and I had my last cardiac rehab last week. I have an awful lot of alone time right now :/
On July 16, 2014...
Ernie posted a note for Susan that says:
I'm a "worrier", so I have anxiety and apprehension every day. Mostly at night when I'm trying to get to sleep.
Quit worrying woman! You're doing great. :)
On July 9, 2014...
Peter Willard posted a note for Susan that says:
Susan
I enjoyed reading your journal and God is good.
Susan Smith Hope my journal is helpful to others. Yes God is good all the time.
On July 9, 2014...
Eleanor posted a note for Susan that says:
Oh my, Susan, how well you are doing, I am very glad. I am new here, but read your journal and was inspired. I am 68 and have surgery on Monday. I was so ready, I am actually more scared of waiting that being at the hospital at 5am! I am amazed at the rapid recovery in just 8 weeks. I hope to do so well. Keep moving forward in good health.
Susan Smith Thanks Eleanor. I am sure you will do fine. The waiting is a stressful time, but you will be in goo ... Read more
Susan Smith Thanks Eleanor. I am sure you will do fine. The waiting is a stressful time, but you will be in good hands. I will keep you in my prayers for a successful surgery and a smooth recovery. God bless you.
On July 9, 2014...
Jim Jones posted a note for Susan that says:
Susan
I could not be happier for you!
Energy does comes back in time.
Do what you can for yourself daily but try not to overdo it - I can tell you from my experience what happens when you do!
Have a great one!
Susan Smith My home health care nurse came by today for the last time and pronounced that I was doing great. Ton ... Read more
Susan Smith My home health care nurse came by today for the last time and pronounced that I was doing great. Tonight I am apprehensive and nervous for some reason, but I am sure I will get through this too. I will try not to over do. Take care.
On July 8, 2014...
Meredith Bray posted a note for Susan that says:
Glad to hear you're doing well! I've just recently started having sternum discomfort again. it's in the same places as before, and seems to be aggravated by completely random motions. I've got a few more rehab sessions left, and I'll talk to the therapists about it. Maybe I should take my own advice - stand up straight!
Peace & continued healing for you!
Susan Smith Sometimes we just need to give ourselves a good talking to and then take our own advise. Posture is ... Read more
Susan Smith Sometimes we just need to give ourselves a good talking to and then take our own advise. Posture is important. I wonder how long the sternum is touchy? Peace to you and take care.
On July 2, 2014...
Love from Gabi x posted a note for Susan that says:
Good luck on Monday Susan when you get the OK to return to work. You are terrific don't overdo it though!
Susan Smith Dear Gabi, I have been praying for you and your family as they gather around your brother to express ... Read more
Susan Smith Dear Gabi, I have been praying for you and your family as they gather around your brother to express your love and caring for him. Yes I am well on my way to full recovery and am thankful. Do keep in touch dear one.
On July 1, 2014...
Jim Jones posted a note for Susan that says:
Susan:
I could not be any happier for you. Great progress in only 2 months. More health is in front of you for sure.
Love the new car. Enjoy the style!
Keep up your excellent progress and enjoy the 4th.
All the best.
Susan Smith Jim, It is amazing, just when you think it is all for naught, things turn around and you are improvin ... Read more
Susan Smith Jim, It is amazing, just when you think it is all for naught, things turn around and you are improving by leaps and bounds. Jim, may you and Lise have a blessed 4th of July as we all give thanks for our good health. The very best to you and Lise.
On June 29, 2014...
Terrie posted a note for Susan that says:
Susan.
Good thing your heart surgery was over when you received that bill! Imagine that to be enough to send a normal heart into cardiac arrest!
So glad to hear you are doing so well
Have to tell you after re-reading your journal(remembering your weight loss achievements) I picked up cauliflower, broccoli, green beans and squash and thought of you, Ha! Continued progress and Happiness! Enjoy your posts, keep them coming!
Susan Smith Yum my favorite veggies. The weight loss was important and I have manage to keep it off. My post sur ... Read more
Susan Smith Yum my favorite veggies. The weight loss was important and I have manage to keep it off. My post surgical regiment requires that I weigh every day and any increase over 5 pounds must be reported to the doctor. So I am watchful. Terrie you will do great.
On June 29, 2014...
Barbara Colvin posted a note for Susan that says:
WONDERFUL!!!!! So happy to hear of your progress. Keep moving forward. And keep leaning on those "everlasting arms."
Linda H and Elsie posted a note for Susan that says:
Hey Susan, Happy to hear you doing so much better. Its funny how we take little things for granted a curling iron lol. You and Bossie get out and a fun life. Don't let Bossie get you into any trouble though. I find when I pass cows I get mooed at. I just moo back at them.
Take care friend.
Susan Smith Linda, you and Elsie are great. I am LOL and mooing at the same time. There was 2 things that upse ... Read more
Susan Smith Linda, you and Elsie are great. I am LOL and mooing at the same time. There was 2 things that upset me while being the hospital (2nd time) and the rehab facility and that was the condition of my hair and lack of shower time. So now that I can do all these things (by myself) I relish them and really appreciate them. Before the surgery I did them without thinking. Have a great day. I can't wait to pass some cows.
On June 19, 2014...
Gary posted a note for Susan that says:
Hey Susan good to hear you are feeling well enough to care how you look! I'm going on 12 weeks and the stamina is really just returning. Don't rush it those afternoon cat naps are heaven. Be able to drive was a turning point for me to feel indepent again.
Susan Smith Gary, love those cat naps. Now I cat nap in the morning and take one in the afternoon. I am glad to ... Read more
Susan Smith Gary, love those cat naps. Now I cat nap in the morning and take one in the afternoon. I am glad to know it might be 3 months before my stamina returns or is noticeably better. Yes driving will be a big thing. Have a super day.
On June 18, 2014...
Love from Gabi x posted a note for Susan that says:
So that's how you do it, the old curling iron trick! No wonder you look so foxy in your profile pic! It sounds like you have now turned a corner and are on a different level of healing. So good to know that about you Susan my friend. I am really sorry to hear of your ex's death! It is very disturbing and makes us all count the blessings we have. My brother Brian has been given the worst news - he has terminal cancer. It will be his 79th birthday next Wednesday and the family are gathering to be with him. He lives in Canberra in the ACT (Australian Capital Territory) Another state for us. I will be away for 3 days. Please give Jeff my love! Susan you must be so proud of your wonderful son. Now git in dat car and drive! Live dangerously n disgracefully! <"!"> X
Susan Smith Gabi, you are wicked. Sorry about the bad news for your brother, Brian. It is good that the family c ... Read more
Susan Smith Gabi, you are wicked. Sorry about the bad news for your brother, Brian. It is good that the family can come together to share his birthday and to let him know he will be missed. I always remember when my mother was given the same diagnosis of terminal cancer that a nurse friend said that there will come time that you must let her know how much you will miss her. That time came and we all cried together and hugged. It was worth everything. So keep that in mine. Lots of love susan
On June 18, 2014...
Terrie posted a note for Susan that says:
Susan, Glad to see you are doing so much better. But I see no reason for the hair curler when you are about to take to the highway. Lady, unroll the windows and let the hair fly! Yippee! You are on the road again. Must feel good! Continue to gain strength and know we are all watching out here and happy to see you moving on! (Sorry about your X) as no matter the history it is a piece of your life! Also want to shout out at your son Jeff for all his earlier posts when you were unable to keep up!
I will also let my Cousin Mike and her husband Ron know you are on the road as they are in Florida as well! Drive safe!
Susan Smith Terrie, love to let the wind blow through my hair, but maybe I will curl it first. LOL. Your cousi ... Read more
Susan Smith Terrie, love to let the wind blow through my hair, but maybe I will curl it first. LOL. Your cousin is safe for the moment as I am still not driving, but will be soon. have a super good day.
On June 18, 2014...
Ruth Valenzuela posted a note for Susan that says:
It is good to see you doing so well. You give me hope and encouragement in that you almost feel ready to go to work! Keep it up!
Susan Smith Ruth, We all need hope and we know that Jesus is our hope. Yes I am on the right track. Take care . ... Read more
Susan Smith Ruth, We all need hope and we know that Jesus is our hope. Yes I am on the right track. Take care .
On June 11, 2014...
Mike posted a note for Susan that says:
Yes, Susan, I took Xarelto for nearly 5 months. Started in Jan when I was in serious AFib as stroke preventative. Had an Electro CardioVersion beginning Feb, but stayed on Xarelto, 15 mg. once daily.
Mid-May, I woke in the night with nose bleed that would not quit. Had to go to ER to get it cauterized and packed. My cardiologist had me come in for a fresh EKG. All sinus and very low stroke risk, so he stopped the Xarelto.
Overall, no problem with it. Nose bleed would have been same with any blood thinner. No side effects with Xarelto.
Susan Smith Thanks Mike and glad to hear no actual side effects.
On June 10, 2014...
Gabi x posted a note for Susan that says:
Yeah Susan if Xarelto agrees with you its gr8 because it is just a blanket dose for all users and eliminates the need for blood testing to check INR levels. I have been on it for quite some months and it has made life a lot easier for me. Sorry that happened to you re the confirmation of appointment! It would be better if a message like 'this is a reminder of your apt tomorrow if you are unable to come pls advise us' Less stuffing around I reckon! You must be sooo happy to be home, enjoy it now you have been through the wringer and then some. Lotsa love,
Susan Smith Gabi, forgot you said you were on it. I had some afib in the hospital. One night I woke up with 5 ... Read more
Susan Smith Gabi, forgot you said you were on it. I had some afib in the hospital. One night I woke up with 5 faces looking down at me. I apparently went into afib also my heart rate was slow. Happy certainly describes how I feel. Being home makes all the difference in the world. My stuff surrounding me and my cat making bread on my lap. How nice. Lots love right back at ya.
On June 10, 2014...
Meredith Bray posted a note for Susan that says:
I can't take xarelto because I have a mechanical valve. I'm so glad you are getting around. Isn't it grand????
Susan Smith Meredith, I have a friend who asked about my taking it and valve involved afib. The ads on tv impl ... Read more
Susan Smith Meredith, I have a friend who asked about my taking it and valve involved afib. The ads on tv imply you should not take it, but it is like your situation where you have mechanical valve, where I have tissue valve. Yes it is grand.
On June 10, 2014...
Jim Jones posted a note for Susan that says:
Susan
I am so glad that you are home and out and about! This is a wonderful step forward. Keep up walking as you can and take care of yourself! And keep up your great sense of humor. All the best.
Susan Smith Jim, walk, walk and more walking. My sister is a slave driver and won't let sit too long. My house ... Read more
Susan Smith Jim, walk, walk and more walking. My sister is a slave driver and won't let sit too long. My house is small, but I think I have walked to every corner. I also walk out to the mailbox and back. PT starts today. Yah! Thanks Jim for all encouragement.
On June 8, 2014...
Carol Jackson posted a note for Susan that says:
Susan's back! Not only back at home but really back to her old self with her quick wit! I love the title of your last entry!
Sounds like you can just sit back and watch things happen in your home! Keep on walking and doing your daily stretches. So glad to hear you are finally home
Take care.
Susan Smith Thanks Carol, most days are not so wild.
On June 8, 2014...
Ernie A.S. posted a note for Susan that says:
Were you the only one nude when you had the house full of people, or were they nude, too? I suppose your house is probably "clothing optional".
Glad you are back home.
Susan Smith Ernie, I didn't want to scare everyone away, so I chose to wear clothes, however baggy the were. ye ... Read more
Susan Smith Ernie, I didn't want to scare everyone away, so I chose to wear clothes, however baggy the were. yes I am walking around the house and out to the mailbox at the end of the driveway. Home sweet home.
On June 7, 2014...
Gabi x posted a note for Susan that says:
Phew! That is a whole lota shakin' goin' on Susan! Sounds like Grand Central Station. Good that you could just take it all in! Sorry to hear about Jeffs dad and your ex poor man! Relax now and take it easy!
Rach s posted a note for Susan that says:
Woohoo it's good to have a date isn't it? Was just reading your other guest book comments - I LOVED the photos you sent me in hospital. They were so sunny & reminded me there was still a world outside of my stinky hospital room! I'm from the coast originally and miss the beach a lot, sadly it's not as sunny as your coastline though :) xx
Susan Smith Dear Rachel, glad they brought into your stinky old hospital room . Yes you of all people appreciat ... Read more
Susan Smith Dear Rachel, glad they brought into your stinky old hospital room . Yes you of all people appreciate a date to go home. Today is the day and I am excited to go home and nervous at the same time. It has been 6weeks and my cat may not know me
but here I come ready or not
Glad to hear you are doing so much better after your recent lung problem.
You are a trooper! I remember how you saw Jim Jones, Ernie, Dan and I through our surgeries in Oct. And Nov. and gave us so much encouragement. I hope all of
Us have given you a lot of encouragement, support and prayers through your journey. You are now on your way to Zumba!! After 9 1/2 months I am doing great but still need to lose weight which is very difficult to do. Take care and God bless.