Having a bit of a hard time with the waiting part i am now about 2 weeks away from my surgery and I won’t lie to you I am scared, probably not of the surgery ...Read more
Having a bit of a hard time with the waiting part i am now about 2 weeks away from my surgery and I won’t lie to you I am scared, probably not of the surgery per se but about my recovery and how will this affect me when I come back to my normal life, also the anxiety of the date approaching is on the rise and even thought I am putting a tough face for my family and friends for the first time in my life , my life is something that’s not on my control and that’s as scary feeling as it gets, especially at 26 years old when normally you are not supposed to be facing things like this. Apart from this thank god I have loving family and friends, I really don’t know where I would be without them, also my birthday is on Sunday so hopefully that will bring back the good spirit and forget about the surgery for a while.
As they say the hardest part is the wait..... but at least you know its all gonna be over soon, i am feeling energized and cant wait for my surgery but the ...Read more
As they say the hardest part is the wait..... but at least you know its all gonna be over soon, i am feeling energized and cant wait for my surgery but the time passes slowly, i am really not worried about me i know its all gonna be ok, but my family is really worried you can just tell. Anyways i have a great doctor and great faith that i will have a cool scar to show off lol, you gotta keep a positive attitude always right?
I never been to a doctor for nothing more than a flu, i never even broke my arm , not even a finger, so yeah i was scared about going to a cardiologist, i started ...Read more
I never been to a doctor for nothing more than a flu, i never even broke my arm , not even a finger, so yeah i was scared about going to a cardiologist, i started going to the best cardiologist in my country and he explained we needed to keep the heart pressure under control until i had my appointment to see a heart valve surgeon, at this point we scheduled an appointment to see Dr. Nicolas Brozzi at the Cleveland Clinic in Miami, so Dr Giammatei which is my current Cardiologist started giving me two pills to take one in the morning called Concor and one at night called Diovan, they helped a lot regulating my heart pressure, but the symptoms of the disease started showing more and more, i started getting really tired and have shortness of breath, walking upstairs and i was already exhausted.
So we had an appointmente to the cleveland clinic on march 8th with Dr. Brozzi, and he confirmed that i needed to have inmediate surgery and that we shouldnt wait more than 3 months to do it, he recommended an Aoritc Valve Replacement,using a Mechanical Valve, and he also discovered i had an Aortyc Aneurysm that needed to be repaired, i have to say i never had trust in any doctor, but Dr. Brozzi is as they say "one of the good guys" he explained everything to me and i told him i wanted him to do whatever he felt it was necessary i didnt want my mom or my dad taking any decisions the day of the surgery, they love me very much and i dont want anyone going out of surgery to ask them consent for anything, so i told him do whatever you have to do. So they schedule my surgery for June 11th, i will be going to Miami on June 8th, my whole family is going with me, even my nieces they are 5 and 4 probably dont understand but they all wanna be there for me and that gives me the strenght i need not to be worried, and as i told my friends this weekend, im gonna chuck norris the s..t out of this disease and hopefully see it trough and have a story to tell my son or daughter someday.
I wanted to do this in order to share my experience, to have a little background i was one of the healthiest kids you will ever meet, wasnt an athletic type ...Read more
I wanted to do this in order to share my experience, to have a little background i was one of the healthiest kids you will ever meet, wasnt an athletic type but as healthy as you can get, rarely got sick, never been in an overnight stay in a hospital in my life. Thats probably why this was a surprise, i was working in Colombia, i work for an Airline in a high stress job, i was over there for four months working and i loved it, i always loved to work with deadlines and stress, dont know why. The las month i was over there before i was to return to my country was November 2013, after a 36 hour working day i came back to my hotel, started getting really tired, i tought it was normal due to the workload i had over the last week, but then my heart started beating really fast( i always had a really fast heartbeat, lol it usually worked with the girls i used to tell them my heart was beating fast for them, now i know lol), so i tought that was normal as well, then i started feeling a lot of heart pain and my right arm started going numb , this is where i really got worried, here is my first advice never be a hero when it comes to disease, i remember i didnt want to scare anyone so i didnt call anyone, i started praying and i started moving and moving my arm as well trying to wake it up, and making this breathing excersices my grandmother teached me, i dont know how or why but the chest pain went away, i didnt tell anyone, i was staying at a hotel while i was working over there. I woke up a little late the next day and went to work normally..... never said anything.
The same episode occurred to me when i was back home about 2 weeks later, my dad and mom inmediatly took me to the ER, probably one of the scariest afternoons i had, they made a ton of exams, inlcuding an Echo and thats where they knew they told my dad and i could hear that i had Severe Aortic Insufficiency .... i remember asking a dads friend who is a doctor thru Whatsapp what was that and he said i should ask my doctor, so i asked and they explained. Thats how i found out, that was on December 2013 and thats how i found out.