I hope you are well, 6 months after our "makeover." :) How are you feeling? It was so nice to hear from you. I "graduated" from cardiac rehab last Friday - I am very glad I did that. It helped a lot. An echo in Sept. shows the repair is leaking a bit - but no symptoms. As they say, it is what it is. Just living my life. Let me know how you are !! Take care of yourself, Happy Thanksgiving! K
Just me. Glad to see your note. Did you get to a follow-up appt. this month at Mt. Sinai? How did you like that pilgrimage to get an x-ray?? :)
I start cardiac rehab this coming Wednesday; had my orientation to the unit last week. I am hoping one hour three days a week will whip me into shape... Ha Ha!
Just thinking of you.. I hope you're having a good week. Not much to report with me; just slowly getting my act together. I hope you're having a good recovery in NYC.. stay cool this week! l, Kate R
I am so sorry to hear your news about your brother. My condolences... I know it is even harder because you are so far away here in NY. Hang in there.. one day at a time.
Not much new with me; I don't seem to gain much more strength- exhausted after 10 minute walks.. still napping at least once a day. My incision hurts... Seems like that means it is healing... Best wishes for a beautiful Sunday, Kate
REGINA!!!!!!! You're here!! Your surgery buddies have been worried about you. So glad you're back posting again. I had the dizziness too for the first little while, but it's getting much better. I think once we get home, the recovery really begins. Take it easy, be good to yourself.
Congrats on returning home Regina. You must be glad. I too will look forward to hearing more details when you are up to sharing. Were they able to repair your valve or did you need a replace? Hope you are getting better with each day.
YAYAYAYAY!!! So glad you're home. You'll see how much better things get when you are eating your own food and sleeping in your own chair or bed. I'm so sorry I didn't get a chance to come say goodbye -- they moved me off 7W in the middle of the night. I got home this past Friday, just in time for a great weekend. Can't wait to hear how things are going for you.
Good luck with the surgery tomorrow. I was diagnosed earlier this year, but now 4 months later found out 2 days ago I am in severe congestive heart failure with a leakage of 4+. I liked your post about the bra as I just asked my husband that question today. Us gals think alike. I also wonder what is the dental clearance all of you are speaking about? I am sure you will not have time to respond tonight, but I will follow your journal to hear about your recovery. God bless. Karen Campo
Won't be long now!!! Today's my last day of work, we'll be driving down to the city tomorrow when Stewart gets back from work. Wonder which of us will go first on Friday. Flip ya for it.... :-)
See you in a few days!
my cardiac cath is tomorrow as well.
Were you told you can't drive all weekend?
I have stuff to do and this is going to cramp my style!
Is your doc going in thru the groin? I've heard they can go in thru you arm, but haven't heard of anyone who actually had that approach.
Best of luck. Let me know how it goes.
We will be "surgery sisters!" I was hoping someone from here would be at Mt. Sinai when I was. Bob and Betsy will be there, too. Bob is scheduled with Dr. Adams for the 8th. I know we will all be just fine. You wait and see....we'll be walking the halls together before you know it!
I'm so happy that your meeting with Dr. Adam's went well. I have a consultation with him on May 30th. Will he be doing a sternectomy or a mini thoracotomy for you? I also have MVP and just learned that it is now severe.
If you are larger busted, bra is important. Ask your surgeon. All hospitals have surgical bras. Wearing bra, (again if you are big busted) helps with the healing. You don't want weight of breasts pulling on incision.
I recently purchased a plush Lazy-Boy brand recliner not knowing it would help with recover after surgery (mine is not scheduled yet). The recliner is very nice but when reclined it requires some effort to reach the recliner handle on the side to put the seat and footrest down before getting up. The best thing to do is to go to furniture stores, obviously, and test them out and see which is easier to operate.
I have a Lazy boy recliner. It's not power, but I don't think that will be a problem.
What type of surgery are you having? I'm having a thoacotomy which means my incision will be under my right breast...right where a bra would sit. I would imagine they'd give me something in the hospital. I'm not planning on buying anything special before I go in. I really don't know what to expect. I can't stand not wearing a bra and imagine it will be very uncomfortable for those of us with junk under the hood. :)
I almost deleted your post as a mistake.Thats
why this is so lat in getting to you. When you
are feeling up to it call me. Take care of]
yourself. I only wish I could help you out but
as you know I still are under the care of my]
doctors at Sloan and no decisions will be
made till May.Love, Susan
Who did you end up picking? If you chose Dr. Adams and are ready to schedule, go for May 11th and maybe we can be roomies. :-) Not that I want you to rush into anything! I've been waiting for months and am ready to get this OVER with!!
More important, how are you feeling about the whole thing? Not too anxious, I hope.
Feel free to e-mail me any time at email@example.com if you just want to talk or vent.
Regina, I met with Columbia Presby (Dr. Craig Smith who performed President Clinton's heart surgery) and because I live on the Island, I also considered St. Francis, which has a tremendous reputation. In the end I went with Dr. Adams at Mt. Sinai. You have to feel comfortable with the surgeon you meet and find out how many procedures they've done, etc. That said, the team at Mt. Sinai was top notch and I was very happy with my decision. You kind of can't go wrong with any of the three locations, in my humble opinion. I hope this helps. Lily
Hi, Regina -- I have the same diagnosis as you do and did a whole lot of homework. I also decided on Dr. David Adams at Mt. Sinai. My date is May 11th. Lots of folks here seem to have had great success with MV repair at his hands. If you haven't already done so, I suggest you visit his site:
More than you EVER wanted to know! :-)
Regina - like Richard, I did plenty of homework for my mitral valve regurgitation and traveled far from my home in Georgia. Dr David Adams and his team at Mount Sinai in NYC did my surgery. If you want details, see my journal. You'll find that Adam Pick's web site has tremendous resources, with plenty of amazing people offering support and advice.
- Jim Smith (surgery 3/13/2012)
Hello Regina - When I did my home work I went with The Cleveland Clinic the # 1 heart Hospital in the USA for last 18 years. I went with Dr. Gillinov one of the best surgeons in the world - He performed surgery on actor Robin Willams and many many more - Good luck and remember you have only one shot at it .