Dear Michael and family,
Congratulations on your anniversary. It is an important milestone.nI had MVR on 3/2/10 and am doing great. I too, have a daughter that was born with TOF, and we thought needed no further repairs. She is 25 and we were just told she needs a PVR within a year from now. What type of valve did you use? Also, did they say down the road it could be repaired percutaneously? Thank you so much for your input....there are not many on here with this type of repair.
Hello! Thank you for your note. My surgery is next Wednesday so I'm getting down to the last few days...your note was very much appreciated :) My mom is planning on posting on the journal for me. It's good to know that the journal helped Michael through his recovery. I'm just trying to keep my thoughts on what it will be like two or three months out instead of focusing on what it will feel like immediately after surgery! Thanks for keeping me in your thoughts.
Hi there Michael's parents (and Michael)!
Thanks for your response. My name is Shari Rosenberg and I started a journal (one entry) but will start writing in it more when my surgery gets closer (end of September). You are welcome to follow it of course if you are interested!
Best of luck to Michael! Thanks for this great journal!
Hi Michael! It looks like you're done with your journal but your story and positive energy have really made me feel better about things as a fellow young valve surgery patient! I am getting surgery in September, which is now right around the corner! And I found your journal which has been very positive and energetic. Best of luck to you on the next chapter of your life and thanks for sharing your story!
michael lucky for you I LOVE lemonade! put me down for 10 cups. I was out of town and missed it! My dad starts his cancer radiation next week so much going on here as well but never stop thinking about you and your wonderful family. I will cut you a check tomorrow and beckon for Jim to come pick it up. Keep smiling sunshine. All my love. Jenn Heller.
I know you're busy....but what about posting the pictures of you playing guitar and the giant Zebra sneaking up on you???? I know, I'm a slave driver , just ask Conner! The count down to college is this week, taking him up on Saturday....and somehow need to fit a birthday party for Evan in too...oh, yeah, and today is MY birthday! June! Ugh! Have a GREAT day! XOXOXOX Mrs. Holland
It was great to see you yesterday - looking better each time! We could all see such a difference! We could see a difference in the lighter spirits of your family too. Enjoy your time with Grandma and Grandpa - great chance to ask them questions about their life experiences, childhood, special things they remember. Your very fortunate to have them there with you. Love you sweetie, see you soon.
You have gone from hugging Lady Bugs,
to playing guitar. Now thats progress.
Glad to know you are getting better all the time.
I spoke to the rim guy and he will be able to get your rims from me next Thursday.
He stays busy,
Talk to ya soon,
What great news! Keep up the good work. These two weeks have flown by for us, although I am sure you do not feel the same way. But hopefully, you can look back and see what amazing progress you have made and can feel like you are well on your way to recovery. We continue to pray for God's healing and strength. Say hello to everyone for us. Love, Aunt Karen for all
Hey Michael, It was so great seeing you yesterday. Thanks for stopping by with your dad. You are doing amazing and look incredible. I would be curled up in a corner in the fetal position because I'm such a wimp (ssshh, don't tell anyone!) ... lol ... Someone a few posts down said to enjoy all this attention now because before you know it will be gone. I have a feeling you were never starved for attention before and won't be in the future. You're a sweetie and a great young man! Go take care of yourself and we'll see you soon. Jenn Heller ... oh Pam is sad she missed you yesterday, um, not that I rubbed it in or anything! lol ...
Michael, great update report and glad to see all the support you are getting with Grandma and Grandpa visiting. Now that we are back in Michigan, I am not getting as much golf in as we did before you graduation. Wish we could visit to have you drive me around on the courses and you will be out there hitting those long drives and making fantastic shots before long, Michael. Keep up the great progress and get your breathing exercises in each day. Love, Aunt Cindy and Uncle Dick
I have been following your journal for some time and I want to tell you what an amazing young man you are and please tell you parents what an amazing job they have done. You have already come a long way and it hasn't even been two weeks since your surgery. Hopefully this journal will help you with those blue moments, you wouldn't be normal if you didn't have them once in a while. Those will pass the stronger you get. My husband is eight weeks out from surgery and I can tell you that everyday will get easier. Take advantage of all of attention because before you know it things will be back to normal. You are in inspiration.
Hey buddy glad to hear everything is going well - not as fast as you'd like i'm sure - but pretty darn amazing. There will be plenty of time for busy stuff - try to enjoy your recup (recoup?) time - when you get to be my age you'll wish you had it again! see ya soon man....
So good to know you are sleeping better. Leave it to Grampa to solve the raised bed issue. Heard you were having pasties last night. I am so jealous! So many people from our church have asked about you and how you are doing. You had, and still have, an army of prayer warriors from Ohio. We miss you and wish we could be there to keep you busy! Jeremy would love to team with you to take on your Mom and I in Smear. Say Hi to all for us.
Love, Aunt Karen
Walk, walk, walk.... Just a little unsolicited advice for you from an old(er) guy. Don't know exactly where Ponte Vedra Beach is...but know when I've spent summer months at Montgomery, AL, the heat and humidity was, well, will say, really uncomfortable June through August. But, still was able to do some track work and other runs in the city for exercise very early in the AM, sometimes before the sunrise, and later in the evening, just before and sometimes after sunset. You are young and strong. I'm guessing...chk with your doc...the more walking you can do the better it is for you, and then whatever exercise suits you that your medical people approve...but, with the dog, with friends or family, or solo...do some progressively long walks to help you. ...barry on the mtn in NM
Please tell Grandpa that if he runs out of projects at your house, I have a few that can be taken care of at mine .. and you can rest in the guest room! :) Glad you're doing well. Just take advantage of being able to rest back to health and having all this down time. There will come a day that you wish you had all this time on your hands ... trust me, I know! :) Take care Michael. Jenn Heller
Don't be so hard on yourself stay positive and I know your grandma will keep you laughing. You are blessed to have so many wonderful friends and family in your life. Keep up your hard work. I will be out of town for the next 4 days so will look for your messages when I get back. Lots of love to you, mom, dad, grandma and grandpa!
We love you Michael. Blue days suck but are completely normal. Those of us, who have NO excuse, still have blue days sometimes. I just hate when that happens! When you are ready for a hug and a Cabana burger, let us know.
Miss Joni T
It was great to talk to you yesterday! I was glad to hear your voice, you sounded good! What a blessing!! Keep up the good work in your recovery and get Gramm out for a walk with you! Love you, Aunt Susie
Hey, Michael! Owen has been keeping us posted on your recovery. Blessings to you! You are in our prayers and we look forward to seeing you AND your folks one day soon. love to you and your mom and dad. wendee & sims rogers xoxox
Hey Michael. You never cease to amaze and inspire, do you? So glad to hear how wonderful you are doing. Pushing the buggy? Already? Amazing! I have some shopping to do tomorrow... You can tag along!! ;) keep up the awesome work. Xo Jenn Heller
Hi Michael! We had a great time last night visiting you! Were you as thirsty all night as I was from that Chinese food????? Boy, it was salty! I woke up today all bloated...probably how you felt in the hospital ;) I hope the drainage of Greg's knee was successful and he is on the mend. So nice that you were there for him! Hope Grandma and Grandpa got there ok! Hey, next week is Conner's 18th birthday and Vicky is trying to plan a little get together...I think she may have called you...it will be very low key...I'll make sure you know the details and maybe we can get you there for a bit! Love Mrs. Holland
Great job! Make sure you use your SI so your lungs get stronger. I am happy to hear your grandma and grandpa will be there to make you more and get well. You sound wonderful and poaitive. Keep up the good work and have fun with your grandparents and friends. i will say a prayer for you and your friend. Love you,
Good morning, Sunshine! That's funny that you used the word "surreal" to describe how you feel because that is exactly what I was thinking when Conner told me about his visit with you. The human body and mind are an awesome thing...and by the great gifts of God to talented surgeons and nurses and the bodies incredible ability to heal, here you are today! A week after major intrusions in to your boy, you're going to Home Depot! What's next, Disneyland!? Your positive outlook and the support of your loving parents no doubt is a contributor to how successful this process has been for you. Maybe "Dr. Bob's" check up helped too! Have another great day! Love Mrs. Holland (tell me when you are up for some spicy Thai Beef salad!, but first make sure you are able to get to the bathroom quickly if needed! ha! Again, the conversation digresses to poop! )
Hi Michael, Sounds like your energy levels are are getting back quickly. While thats great to hear and see, be sure to give your body the rest it needs--It's been through a lot!
Looks like you have made some good friends from reading your journal.Sure is nice to know how much support one has when you need it.
Keep up the good attitude and continued success of rehab. Looking forward to your updates and progress reports.
Glad to hear you got out some yesterday and got some rest! That would be great if you can make it into your bed soon! We have had now power here for 7 hours! Fun fun! It was Isabelle's last day of school today and Liv has her Dance Recital tonight. Been crazy here but will try to send pics over weekend. We miss all of you and can't wait til end of month when we come back down. Tata for now!
We're thinking of you, and praying for your comfort and healing. You're such a strong young man! We're so excited for what lies ahead for you. Don't rush, take your time. Stay patient and follow all the directions, try different things to get comfortable. It's a waiting game now. Find that book you've been wanting to read! We love you dear. God Bless!
So glad you are home. I am sure you are more comfortable there, for the most part, than in the hospital. I will be praying that sleeping becomes easier. Wish we were close enough to drop by. Hang in there. We love you.