Thanks for signing my guestbook. Yes, My rheumatologist did run the CCP test and it was negative. My Ferritin was high, so something is going on. Just have to find out why. Time will tell I suppose. Otherwise, I'm feeling very good right now.
Great news on the echo and bp being under better control without medication! Too bad it took so long to diagnose the fibromyalgia. Usually they test your trigger points and if most of them are positive, that's another way to come up with a diagnosis. Hopefully the treatment will work and you'll feel 100% with your active life.
Hope the next echo gives he doctor a clue as to what treatment will be best for you. On my one year anniversary (last month) I re-read my journal and 90% of my guest book. It is amazing to realize how far we have come and remind ourselves how blessed we are. I also realize a lot of the issues have faded from my mind. Right now am especially praying for Ruth who had her surgery last week and is having a complicated and serious recovery. Wishing you a beautiful spring.
Hey Melany....I am so sorry about this new problem. We did put you on the prayer list at church last night. God can answer prayers as you well know. Just wanted to let you know that you guys are in my thoughts and prayers....Love, Pam
It is so great to hear from you. My blood pleasure was low after the surgery for quite awhile, but I had no symptoms so it was not considered a problem. I hope yours is a medication issue as others have stated. Your family sounds happy and healthy.
Happy Easter and let us know how this works out.
Good to hear from you, but sorry to hear you have some residual or continuing issues. I think the Heart Valve Journals have now been around long enough for us to follow enough patients to see that many of us have issues after heart valve surgery. Seems like everyone's issues are different. Thankfully there are those with no issues at all post recovery. I have not had any blood pressure issues, though mine tends to run on the low side (say 90/60). BP has never been an issue for, well, so far. 13 months post-op (mitral valve repair) I developed pericardial effusion symptoms, and an echo revealed that sure enough I was a pericarditis repeat customer. Even more surprising was now I am having some aortic insufficiency and am under watch for that. Echos every 3 months. So I am also in the camp of those with issues.
Your doctor is on track to do another echo on you but it could just be a medication issue. I'll be praying it's not a big deal.
Glad your family is growing and doing so well. Happy Easter to you guys!
I'm happy you checked in but not happy to hear you're having blood pressure problems. Are you taking any BP meds? Other than having very low BP for about a week after surgery, I haven't experienced this problem so I have no words of wisdom. I hope they figure it out soon.
It sounds like the kids are doing great and other than BP issues, so are you! Big difference from a year ago.
Good to hear from you but sorry to hear of your ongoing blood pressure problems. What is your blood pressure? Do they have you taking it every day. I take mine twice a day per doctor's orders and after many changes in my meds, it's finally in a great range. Hope it stays that way. Wonderful news about the kids and your schooling. You are a busy wife and mom. Don't wait so long to write again.
Yes, I have the hair loss problem. Apparently from what I've read, it's fairly common after OHS. Some of my medications also have this as a side effect. Can't say I have any new hair growth---good for you that you are. I guess the trade off is my heart is healthier. Will be curious to see if anyone else chimes in. Wishing you the most blessed Christmas.
Hi Mel, Thanks for your note. After seven weeks I feel like I have finally turned the corner and am heading back up hill. I had a favorable visit with my local cardiologist today. I'm happy for you and wish you and your family a very Merry Christmas.
Gary Vice, Cincinnati, Ohio
Thank you Melany, I read your entire journal and I appreciate your empathy as you have been through alot. I remember after my 1st open heart repair when I was about your age and I had small children, they are such a comfort. I am glad to see you are doing terrific. I had to laugh in one of your entries when you are hospitalized for a a bout with a cold and said at least it was not your heart. That is about how I feel at this time as so I have a partially collapsed lung at least it is not my heart, we become experts at putting things in the proper prospective. I cont to try to believe as you things happen for a reason and with God and his bigger plan all will be well and I have peace with that. My husband through my heart surgeries has been terrific and yes we sometimes forget in their toughness that they are also under a great deal of stress, your Mom too, being a nurse. I too many years ago was a nurse. Take care and thanks for taking the time to send me such a thoughtful note.
Susan V NC
So wonderful to hear from you and know how you are truly enjoying your family and life. God made our bodies so perfectly that we are able to heal after the surgeries we endure. Continue to enjoy life. This Thanksgiving we will have many reasons to be thankful.
From a fellow North Carolinian. I am fairly new to HVJ and just caught up on your pre, post and recovery. You are amazing considering all you are dealing with ie small children which are such a reason to get up and get better and move back into the path of life and family. Your zest for life prevails. I bet you are looking forward to returning to work
So glad to hear your good news. Going back to work full time is a huge re-entry into normal living. And that's great! Indeed God does work miracles! Prayers for your continued strengthening and healing.
What wonderful news that a drug change made such a good improvement. Great that you're well enough for full time. Hope you do get to relax and put your feet up for awhile when you get home. Know that's hard to do with little ones. Glad you're doing so well.
Glad to hear from you......but sorry to hear you are having bp and heart rate issues. I had a fast heart rate after the surgery and have been on meds to correct it. The meeds have lowered my heart rate, and also my bp to 90/60.....my cardiologist said this is ok as long as I do not have symptoms.....and I do not have any. I hope they can get your problem under control.. You have been through too much.
Keep us posted,
What great progress you have made and will continue to make. I imagine your heart breaks when your son cries but you know what, in the future I believe he will have no memory of this. He's really too young. Keep that thought in mind and hopefully that gives you some kind of consolation. May I ask what kind of work you do and do you think you're up to part time? Prayers continue for you.
Thank you so much for the sweet message you wrote in my guestbook. It really helps to hear that you are not the only person going through something although I would not wish this on anyone.I hope your pain is getting better and you are feeling a difference every day.
Thinking of you,
thank u for ur support in my guest book and very happy that ur doing good and believe me every time u feel pain just look to the eyes of ur childeren and ur husbened u will forget every thing . and thanx again
Thanks for your post in my guestbook. You are doing really, really well. I can make it 4.5 hours and then I'm looking for TWO pain pills. They tried to cut me back to one but I told them I got really squirmy with pain. Good job and that's inspiring. I can't wait to do the same.
I had a couple of surgeries when my kids were toddlers. Boy, does that make it hard!! I still remember. Accept as much help as you can, you deserve the breaks.
So glad today is a better day for you. I guess it will be like a roller coaster up and down for a while. Your children are beautiful and I am sure everyday remind you of pure love. They are the reason to push forward whenever you suffer a setback or have a really bad emotional day. You are a strong woman and I know you will have many beautiful days ahead. Keep us posted.
Hang in there. Sounds like you are almost over the hump. While I was at CC for my surgery, my pericardial effusion was moderate+ following my surgery. I was kept at the hospital for an extra 2 days while they decided next steps. Finally 6 days post op it started to decrease, but still moderate they decided just to treat with ibuprofen. Three weeks post op, after getting home, the pericardial effusion had lessened to mild; my heart rate finally dropped form 100ishto low 80's, high 70's and everyone felt that course would work. Now at 6 weeks post op my heart rate is high 60's, low 70's so I feel everything worked out ok..
I really feel for you right now. While I don't have young children I am a mother-in-law who has helped a lot and like your's, did so most willingly. When she helps you, bear in mind, she is helping her son and his family and I'm sure even if she were on death's doorstep, she would be where she felt she was needed the most and that is at your house. Once you are well and able, I'm sure you will find a way to compensate her. No doubt she's tired but there is very little a child could ask of their parent that the parent wouldn't find a way to do. Consider yourself a very lucky daughter-in-law and accept her help for what it is - a mother's love.
I am keeping you in my prayers that sooooon you'll see some real improvements.
Tomorrow will be three weeks from my second surgery. I too feel like I have more pain than I should. I alternate Darvocet N 100, Motrin 800 and Tramadol every three to four hours and can't say I have ever been pain free since the first surgery. I keep waiting to wake up some morining not hurting. I can not imagine adding small children to the mix! I can barely take care of myself with my husband's full time help (so glad he retired) Your mother-in-law deserves a medal. I am sure she at least has the satisfaction of knowing she is exactly where she needs to be. May God bless her.
I have no words of wisdom, just want you to know I feel for you and that we have to believe there are better days ahead.
Mary Ann from Sioux Falls SD
I am sorry to hear you're having so many problems. On a positive note, it sounds like you've got a wonderful crew at home taking care of you and great doctors, too. My prayers will be with you and your family.
You've had and are going through a really rough time and you are such a trooper and positive person. You acknowledge God has blessed you (and he has)and he will continue to do so. I would imagine if all or at least some of the pain would subside you would feel so much better. What exactly is causing the pain? Reopening your chest and all that entailed? Will continue to pray for your full recovery. Guess you'll just have to remember what you can and cannot do (lifting your son, when there's someone else to help). It's a painful lesson to learn. You are blessed to have such a wonderful mother in law and when you are totally recovered I am sure there are some special things you can do as a treat for her. Prayers from FL to you and your family.
Thanks for signing my guestbook and for your kind words and prayers.
I too had surgery because of pericardial effusion, only mine was a percutaneous needle/pericardial window to drain the fluid through a tube. They got out 500cc's and an additional 250 drained out before they removed the tube. This happened 8 days after my mitral valve repair. I had a stroke 2 days after surgery, and then they had difficulty getting my INR up. So I was in the hospital for 13 days. Thankfully I never had to go back in, especially for another surgery. That must have been tough.
Since my hospitalization I had some lingering issues with pericardial effusion, confirmed by two ECHOs. It was horribly painful to breathe deeply. The doctors put me on Celebrex 200mg once a day back in mid to late February, and I have been on it ever since. I have not had an ECHO since early March. The last one still showed some minimal effusion. Recently I haven't noticed any symptoms, and I wonder how long my cardiologist will keep me on it. I am also taking 27mg iron supplements twice a day, without any issues with constipation.
I understand about the low hemoglobin, I have been on iron twice a day since my discharge in March My iron level is creeping up, but slowly. Have not had night time sweating, however, just some fatigue. Hope they told you to take a stool softener with it as it can be constipating. We'll get better, this is a minor thing.
Sitting here, next to Kimberly, I saw your post and knew I needed to write. I guess it helps to pass the time away while waiting for the next thing to happen.
Please remember, that this is a journey, and even though you have had some very trying times in your recovery, I honestly feel as though each time you have a new obstacle to get over, its only to make you even more appreciative of how far you have come. Please, do not become discouraged with the minor setbacks.
You and your beautiful family are in our prayers.
Good to hear you are able to get out and about and even feel up to it. Obviously things are back on the right track.
We have lots of really close friends who would have helped me out but I wouldn't have asked as much of them as I felt able to ask of my best friend and husband of 42 years. Eight months later he is still doing for me. Sometimes though it's good to remember to put into print how we feel just so they know we really mean it.
What a sweet message about your husband. You're so right . . . what would we do without our spouses every day but especially going through this surgery? I shudder to think.
My first wedding anniversary is this Sunday so the thought of going through this alone is very real to me. I can't imagine it. I've told my husband I'm sorry he's had to go through all this (especially because his previous wife died of cancer and it was very hard on him) but I feel so blessed that I have him to go through it with me.
Thank you for reminding us all how important our caregivers are.
Thanks for the sweet message once again! I am very blessed with my beautiful children and wonderful husband, as I know you are:)
Wishing you each day with less pain!
Thoughts and prayers are with you,
I have been crazy busy with work, traveling and some medically complicated theatrics of my own, so I've been out of the HVJ loop. In reading your journal now, I'm just dumbfounded about all you've been through. I too had issues with pericardial effusion, having a pericardial window surgery 8 days after my open heart surgery. I've had some lingering issues with it. But nothing like you've experienced. Wow, we truly each have our own private journey, and they're all differnt. Truly God is good and is in control of our lives. He does not forsake His own. Yet that doesn't insulate or isolate us from tough challenges. His grace is enough. We'll be praying you experience His healing and grace anew.
Thank you so much for the sweet message in my guestbook. We do have an understanding when it comes to the children. It must be very hard with younger ones, but it's amazing what children understand even at a young age. Mine are older-20, 14 and 12 so they are a huge help and understand more. They are excited I will be better but scared about my surgery. My youngest is very sensitive and keeps asking me to promise her I won't die...that is hard. But we have prepared them for ICU even with all the tubes, because we feel it is important for them to see that I am ok.
I will continue to keep you in my prayers and hope your recovery gets easier with each day!
I understand now how my doctor put my complication of a herniated lung into the severity category of a skinned knee! I thought I was in terrible shape until I read about your ordeal.
Tomorrow will be one week since my setback and second surgery. I am still having lots of discomfort but fully expect time will heal it all.
This all had to be extremely frightening to your family as well as yourself. Sounds like you are slowly making your way back and can expect full recovery.
A friend in heart valve surgery,
I had no idea you were going through all of this. I wish I could have been there to help you in some way. I will be gettign in touch with you. I hope that your recovery continues to do well and that all of the surgery will become a thing of the past. I love the pics of your kid. I love you and hope to see you soon.
I have been thinking about you hope your recovery goes smoother this time. Hang in there. Each week you will find yourself able to do more and feel better each week. You mentioned being wake in the middle of the night waiting for pain medication to kick in. I actually set my alarm clock to wake me up to take pain meds. That way they never wore off completely. I know it's not pleasant to wake up every few hours, but you will sleep better. Take care, Melissa Boardman