We are praying for you and are so glad that there is a heart valve specific type journal where you can share with others and they too can be an encouragement in return. We love you! Ken, Sheila, Matt and Jonny xo
Madeline and Jason~
We were so sorry to hear of your difficult time post-proceedure. We are happy to hear that your physician
believes he was able to process some good heart valve
pictures. Thanks again Jason for saving the day!
One more test down~getting closer to your day of healing!
Joshua 1:9 "Have I not commanded you? Be Strong and
Courageous. Do not be frightened, and do not be dismayed,
for the LORD your God IS with you wherever you go." PTL
Rest~Big Huggies and Lovies~Mommie Roslyn and James xo
I'm so sorry to hear about your scary day! I guess you never know how you will react to different anesthesia. I hope you are feeling better. You didn't need that day, on top of everything. (I'm pretty small too, and I didn't fall asleep. I'm glad I didn't faint, yipes.)
Madeline and Hubby Jason~
We are so so proud of how you are both coming together
as "One Flesh in Christ," handling this new and all consuming
emotional and physical trial. Please know that we are here for
you~and are anticipating a smooth TEE test tomorrow for you
Madeline :-)). Jason thank you for Standing Firm as a Man-Of-God and as Maddie's Best Friend~We Love You! All the while knowing: "Cast your cares upon the Lord, and He will sustain you." Psalm 55:22 Love Love, James & Roslyn Greene Valadez
mommie =) xoxooox
My TEE was way better than I feared. I didn't find the spray bad, I actually waited for about an hour on the table as my cardiologist was called to an emergency stent procedure, so my nerves where in good form!
I didn't fall asleep, probably due to nerves, but I was super spacey, and the procedure really wasn't bad. I was afraid of feeling choked, and I didn't. It seems to go quick, and you are out after an hour or so in recovery. I talked to my doctor right after the tube was pulled out, begging for my non-invasive repair.... I went home and had a good nap.
I had a sore throat, but not too bad. Smooth soup, liquids, soft food, that seemed OK. The sore throat lasted a day or two, not bad.
I have had 2 TEE's in the last two weeks. For me, the worst part of it was the numbing spray they spray into your throat. Soon after they spray it they will give you a sedative that will take the immediate edge off. Before they start, they'll give you something stronger in your i.v. so that you're pretty much asleep. The after is not too bad other than a sore throat for a couple of days. Your esphaugus will hurt as food goes down. But it is tolerable. Good luck and I'll be watching for updates.
Hi Madeline. The news of my severe mitral regurgitation came as a shock/surprise too. But you know, that's a good thing, considering. It means you are relatively symptom free, so your heart is still strong. And so you can find peace in knowing that repairing your valve now will give you back your normal life expectancy. Now that's a gift! -- DVB
Sorry to hear about your shock news! Don't worry, there are lots of here to help you through with any worries you have.
I was born with a aortic stenosis and when I was 20 I got endocarditis. It ate away at my heart valve and I had to have it replaced. This was in 2000. I am now 8 weeks post op number 2! The valve lived for a good 10 years and 7 months.
For me I always knew I would have to have surgery, but the infection messed things up for me and brought it forward by 40 years...so I know how you must be feeling. The positive point is, they know about it and you're going to get it fixed!
It's a procedure that takes place all over the world all the time, and is very well practiced. I know it's still scary, but you will be fine.
If there is anything you want to ask, I've been there twice, so I hope I can help. Search for me on here under surname "Egglestone". I'm 30, so similar age too!
I just made my journal today and am in a similar situation. I'm 26 years old and in the last month found out that I had a murmur and was referred to a cardiologist. It turns out I have a congenital bicuspid and need to have my aortic valve replaced in the next four to five weeks. Stay strong and I hope everything will work well for you. It's amazing what a strong support system can do for you. :-) Sara
Just remember GOD LOVES you, and he has GREAT plans for you. I have Aortic Stenosis & Regurgitation and I will have surgery in the near future. Things will work out and GOD is by your side, I will keep you lifted in Prayer. Take care James Crevier
Wow, you sound like me a year ago...I am 47, and knew I had regurg, but not how bad it was (severe,I found out at the Mayo...YIPES,) and that I would need surgery. I was told I would need surgery within a year or two, and I just got my surgery(July 8th) about a year later. I went to the Mayo clinic this summer. I have 2 children, 9 & almost 11, and I chose to schedule my surgery as soon as school got out, so I could have 8 weeks recovery by the time school got in. They go to school in 3 days, and I had my 8 week anniversary yesterday. I can't believe this worked out, but I am kind of ready to be a busy mom again...well, a more rest-taking, and asking for help a lot mom again.
The anticipation was very anxiety-filled for me. I had a lot of crying jags throughout the year, and a lot right before, when it was confirmed this Spring that it was time. I had trouble sleeping, especially this Spring. Stress management is so key, and the progressive relaxation CD they gave me at the Mayo helped (so did Melatonin.) I think Blue Shield gave me the same CD (I was assigned a special nurse when surgery was imminent.) I just encourage you to reach out to your resources to work with that anxiety...it stinks, and there are so many things you can do to relieve the stress the days it crops up, which I couldn't predict.
On the positive side...my surgery went wonderful, I had a repair with a chest incision. I chose to go to a surgeon who preferred chest incisions, as he had a great record of successful repairs, and my repair was kind of tricky (he did my kind- trimmed my broken chord part of my valve, resewed it, and installed a c shaped ring to cinch in my floppy valve), and this was the surgeon my cardiologist felt was right for me. I really wanted a less invasive repair, but in the end, this worked out fine.
The surgery was super successful, I did well, and am healing fast. I didn't feel the kind of pain I feared, it was better than I thought. I am about 70-80% recovered, and the last part just takes time. I thought the mental stuff was harder than the physical stuff, but being sick magnifies issues that you already have going on...I had distant friendships that didn't improve with surgery, and my isolation made me feel sad during recovery. My mom and husband were super wonderful, and even my kids performed admirably, so I did overall pretty good. It's only heart surgery, not full life repair, too bad...
So, you can get through this. Ask tons of questions, reach out for help, there is a lot of info on this website that helped me. It will all be behind you one day, and you will have a wonderful repaired heart, and go forward healthy again. It feels like a huge gift to be on the other side, I am so grateful, and I read the same sentiments on most people's blogs. I think this adds a lot of really positive stuff to your life.
Hang in there, I remember this period. It was a lot of tissues for me.
You've come to the right place. This site has been a huge blessing for me and my wife.
I had an artificial aorta valve installed 6/30 of this year. You'll hear this many times, but it is true. The pre-sugery stress is the worst part of the whole thing. I was in a panic before it happened.
Well, it happened. It was painful for a while, but now I'm about 9 weeks out and feeling wonderful. It was a pretty traumatic event while it happened, but the recovery went pretty quickly.
Remember science and the skills of your doctors are definitely on your side. You'll be great.
I'll be following your journal. Ask a lot of questions and your fellow HVJ'ers will have answers quickly.
After reading your journal, you are in my thoughts and prayers. You can do this and you will survive. My husband had surgery on 8/16 to replace the aortic valve, bypass and a partial maze procedure. The maze produced was a last minute surprise. The anticipation leading up to the surgery is difficult. We relied completely on God so we did not spend too much time worrying. When is your surgery? I will lift you up in prayer and will follow your journal.