Congratulations! That is awesome! I am three weeks post op today and so far I've walked with my husband 1.25 miles at one clip. I ran my first 5K last July before I knew I had severe MVR and was diagnosed in October. I am looking forward to seeing what it is like to run with my valves repaired!
Thank you for sharing your experiences with all of us who are behind you!
Take care and keep on getting stronger, better, faster!
Congrats on your half marathon! That's awsome!
So glad to hear you're feeling great.
Just curious...what do you set your max heart rate at?
I'm feeling really good too. My BP has been a little high so we're watching that. my max heart rate is usually around 140 (I don't wear a monitor though) .
Good for you! Great job with the race. From 1 runner to another I can assure you time will be your friend. You will be kicking your running mates butts soon. Once I hit 10-11 months my heart completely normalized and can now run pre-surgery speeds with a lower rate than ever. I am thrilled about your race. 13.1 GREAT!!!!! AWESOME!!!
"RUN YOUR OWN LIFE"
Congrats on your half! I have not been on in awhile and, ironically, I saw your post when I checked back. Why ironic? Because I finished my second half today (13 months post op, 1st was 8 months). Isn't it a great feeling to be able to do this after all we have been through?!?!? May there be as many more half marathons in your future as you want.
Hi Kerry, I forgot to sign my name, bc I thought it would come thru. I joined but did not get the confirmation email so now I don't know what to do. I don't see any way to contact the site administrators and I can't recreate the account bc it says there's already an account with that name. I was so looking forward to using this site. And creating my own journal. My email address if you'd like it: firstname.lastname@example.org. Thank you, Jaci Gallman
Hi Kerry! I just read thru all your journal entries. You can imagine how excited I was to find them. Thank you so much for them. I am having exactly the same surgery and Dr. Massimiano is my surgeon. My date is April 4th and I live in Purcellville. I have so many questions I would love to ask you. How are you now at 11 mos. post surgery? Looking forward to talking to you!
So glad to hear you're feeling great.
I'm a little concerned that now the days are getting shorter and colder that I'll slack on my exercise regimen. I'd tend to hibernate in the winter.
Hope your winter is a mild one in VA compared to CT!
Happy Birthday Kerry! You have every right to celebrate and brag about it, especially now. Each one will be cherished from this point out, at least for me!!! I too, have that nagging little voice that keeps asking, "am I really healing like I am supposed to?" I wonder about every little ache and pain, and every "funny" little heart beat. There will always be the fear of returning regurgitation/leaking. I try to focus on the positive, and enjoy every day God chooses to give me! Hope you were able to celebrate in a special way yesterday!!
For some reason I have not been getting your journal update notifications. The same thing with Chris Dixon...I don't get his either. Sorry I haven't "been there" to help support you through your recovery.
I've been going through your journal this morning and I just want to let you know that you are not "alone" in the recovery process and it can indeed take some of us longer than others. Me for example...I aced the surgery itself...was practically a non-event for me. I was so happy to survive, relatively pain-free (never got over a 6 or 7 and that was only 1 time...I think, lol). I get home and the "recovery gremlins" take up residence. For me there have been 2 issues mainly. Neck/shoulder discomfort for about 6 or 7 weeks and scar sensitivity. The shoulder discomfort is finally gone but there is still scar sensitivity. I also developed bronchial pneumonia 3 weeks ago and am just now feeling human again. So...word of caution...be careful. We want to "get back to living" again, but I think our immune systems are still working on taking care of our repaired hearts, so those nasty bugs out there head straight for us! I fought the depression as well. Even though I had a great surgery experience, the isolation of not being able to drive for 6 weeks and my reluctance to "ask for help"(yes, I'm one of those) really gave me the blues. I was all set to start cardiac rehab and here came the pneumonia...another bummer!
So Kerry, don't fret about all of the feelings of depression, don't worry that you aren't progressing as quickly as some. You are completely normal!Just remember...you survived open heart surgery...you will survive recovery as well, lol. And by the way....HAPPY BIRTHDAY IS COOL!!!
I'm new here - mostly just reading & learning so far - I can't speak from experience on the after-surgery adjustment - but, I can imagine it is difficult. It sounds to me like you are doing great, but am sure it is hard.
Kerry, everyone is different, and remember that cardiac depression is very common, especially in women because our hormones take a huge hit! It's easy to try and compare ourselves to others on this site, (I do the same thing) but in reality, we need to pay attention to OUR bodies and our doctors, they know us best! Glad you are able to go back to work, I'm looking forward to it and yet dreading it at the same time!
Everybody heals diffrently, you'll get there just be patient, don't rush, it's been a year for me and am finnaly feeling like am getting back to normal. I had crying spells too, I did get emotional many times, it was hard for me, being a single parent of a very active twelve year old, loosing my job while I was hospitalized last year and facing the surgery on my own while worrying about loosing my apartment and medical insurance, being in menoupause didn't help me either. It has been very emotional for me, many here talk about waitting being the worst part, well for me recovery has been the worst part, it took too long, it was too painful in so many levels, am still going through cardiac depression but improving every day.
You are not alone.
I just heard back from my surgeon that he uses the On-Q pump routinely and will be "installing" one for me. I'm so relieved. Thank you so much for reminding me to ask. I'm not just relieved to know he uses them, but to know he's up to date on the latest technology.
I was reminded of your On-Q pump by your mentioning it in another post. I just emailed my surgeons nurse about it. She's going to get back to me about whether or not he's willing/able to use it. It's funny how they can be set in their ways about how they go about doing things. I'll let you know what his response is.
Thanks for bringing it up again, I wouldn't have thought to ask.
Hi Kerry, good to hear you were able to start cardiac rehab. I'm supposed to start tomorrow, which will be 2 weeks post-op for me. I've been trying to walk a couple miles a day to get ready for this. I was wondering if your incisions are still "numb" and if you are still stiff and sore on your right side? It's getting better for me, but just wondering how long it will be before feeling normal again?!
I'm so glad to hear you enjoyed your first day at rehab. I'm really looking forward to it and am hoping it gives me confidence and a lasting attitude toward good health. I really try, but always end up falling back into bad eating habits.
We're you surprised that they told you about needing to cut three inches from your waist? I'm at the top (but within :)) of the allowable weight for my height. I have a feeling I'll be needing to cut a few inches too. I just hope I work up and can sustain the motivation.
Good luck to you..I hope you enjoy it!
I had mitral and triscupid valve repairs six months ago, and my blood pressure is still low (usually in the 85 over 45 range). No one seems to worried about it though. My heart rate also jumps all over the place. Sometimes it is 37 beats per minute and other times it will be 100 or more. I also get dizzy once in awhile, but not often. The low heart rate drives me nuts more than anything else (and the lower it is, the lower my blood pressure is).
Glad to hear everything else is going well.
Glad to hear you are healing well. I'm certain you are experiencing how fast a lot of the endurance comes back.
My biggest hinderance is what I can do with my arms due to the sensitivity in my chest. My surgeon has now cleared me to lift up to 25lbs for the next week, then I'm on my own.
As you do stuff around the house, move slowly to see what your body is comfortable with. There were certain motions with my arms that were difficult, however that is mostly gone now - just over a month out.
It was sad also for me to leave you yesterday. However, your loving family & friends will see you through the rest of the way. You've done a remarkable job so far. Your will to be well & your excellent outlook on life are your strongest assets to a full recovery. You'll soon be there.
Love & gentle hugs,
Sounds great Kerry. Keep up the positiveness.
Sounds like we had the surgery about the same time frame. Man, are my incisions getting itchy. Did you get the rash thing from the stuff they paint you with. I still can't get some of that stuff off me. LOL. Good luck, and keep us updated.
So glad to see your doing well.
I don't blame you for not posting your incisions. I don't plan on it either.
It's great to hear you're getting by on Tylenol. Presc pain meds are fine if you need them, but they make you so sleepy. I remember after my wrist surgery that I just got sick of falling asleep every time I'd sit down. I was afraid to be in pain, so I started on ibuprofen during the day and the presc stuff at night.
I'd like to talk meyer doc into doing a boob job while he at it. Whatever he does on one side he'd better do on the other. I don't want to come out lopsided! :)
I also throw-up in ICU with the tube still in. I was just grateful for the fact that I hadn't eaten for so long. I had my eyes closed and wondered where that suction came from so fast.
Great that this is just a memory now. The time goes very fast during recovery.
Jane 12/5/11 Mitral Valve repair
Good luck, Kerry. Even people without allergies and pollen sensitivity are complaining about how bad it is this year. I can't even imagine how miserable it must feel when you're already feeling fragile. This too shall pass.
Hi Kerry, Best wishes to you, hope it all works out for you. That must be rough just after surgery. Make sure you turn on the AC and the filters are all clean to keep that bad stuff out of your house. Good luck to you.
For the long haul
That's fascinating, I've never heard of anything like that. Has it been controlling your pain? It certainly does look like the catheter is super thin, so it should come out easily. Let us know how it goes.