I am a 34 year old who was also a blue baby, and just had my pulmonary valve replaced almost 6 months ago. This was my 3rd surgery like you. Feel free to read my journal and email me if you have questions...there is not too many of us who are congenital, especially born with Tetralogy of Fallot and especially not many that have had a pulmonary valve. My thoughts and prayers are with you! There is also a facebook group called Hotties with Tetralogy of Fallot if you want to join it....there are quite a few others like us out there. Take care!!!
Jeanie, I hope you called your doctor! Sounds like you may be overdoing it a little. Take it easy...you will have plenty of time later to be superwoman. And let your doctor know about these symptoms.
Jeanie...welcome to HVJ. Get Adam's book...a ton of great info there. Take the time to go thru the many journals on this site. Here you will find reality and not that stuff you have mentioned. Don't worry yourself with all that nonsense, you are going to be just fine and on the road to recovery before you know it. This time you are in now is the hardest part. Stay strong and think positive thoughts...you will do great!
Hi Jeanie, welcome to the Heart Vavlve Journal! You will find lots of support, encouragement and great tips on the site. Nothing better than advice from those who have actually walked in your shoes so to speak. Anyway...you will do great, you will wake up and not too soon, lol. Keep us posted as you begin your journey!
I agree with Jane! Reading the journals on this site will give you real information about real people, which is far more relevant than fiction that is exactly that- NOT TRUE and intentionally sensational. These stories about real people have been my inspiration since my surgery in June, and have helped me recover both physically and emotionally. I will be checking on you and thinking of you as you get closer to surgery. You are in my prayers.
Vicki Pierson mitral valve repair, 6-2-11
First let me assure you that the odds are highly in your favor. Like you I also read everything that is out there and imagine all the possible scenarios. But let it not get to you. I am a year into my mitral valve surgery and am doing great. But it did take me a whole year to be back to normal. So believe me when I say that you will be alright and come out with a new lease on life. Goodluck you are in my Prayers.
STOP reading those crazy stories and read journal entries on this site. You will find lots of success and inspirational stories and they are true. You will do fine. Its the waiting that is difficult.