Joan Rivera posted a note for Connie that says:
Hi Connie, Amazing story, thank you for sharing your experience. I am moderate to severe aortic valve stenosis and will soon be climbing my mountain as well . I will read your recovery journal and also take notes on what worked for you. Bless you and good luck . Joan
Please keep pushing on the vision and memory issues. Cleveland Clinic appears to be in absolute denial on these issues. My cardiologist is with University Hospitals...I got him to put my complaints in the records, at least.
Hey Connie T. From Nov 30th. I am trying to get caught up on emails. So I will hold you to the lunch date. I would have come up to Greenville if I knew. Tell your husband gas is down to 2.97 today. Pretty cheap. Cost of living in SC is better than NC or GA.. Maybe that will help and if you are 65 years old, you can homestead your house if you buy. Thats a big plus. Talk later
LInda H and Elsie AVR 9/19/12
I had my first visit to the CC on Nov.20 with Dr. Griffin, All went well. I do need to have surgery soon on the mitral valve, hopefully they can repair both leaflets. The anterior leaflet is the worst, that is harder to repair. The main problem is I have a tumor/mass right beside/behind the mitral valve and it is right where they need to work to fix the mitral valve. The mass is big and they don't really know what they are going to do with it, possibly just leaving it alone. They don't think it is cancer and I will have to go through more testing so they know what they are dealing with during the surgery. I'm having problems with the left ventricle too! Dr. Griffin was full of good news!!! Right now CC is working on getting more appts. set up and we will go from there! I'm very glad I'm going there and have complete confidence they can take care of the tumor/mass and the mitral valve. The dr. did say my heart was very unique and unusual!!! Just what I always wanted to hear! Please keep sending out updates on how your recovery is going. That helps me soooo very much.
Hey Connie, Glad to hear from you. So sorry I didnt get to meet you when you came to SC. That would have been awsome. My enjoying rehab also. Although I dont have the 78 crowd. When I go around 1100am is not busy. So I pretty much have all the nurses to myself. I do find it fun but boy Im starting to really get sore and stiff. When I told them I was sore they uped the level and times on me. The nice thing is if I get there a little early its ok. I like that.. The first time I put the heart monitor on I felt like I was wearing a bomb. Well they got the wires inside my shirt and now I feel better,except taking the little tabs off. That kinda hurts as I have so much flab. But now I snap them then stick it on. I just cant believe how I am walking etc and not getting out of breath. So nice :)
I have rehab for 36 times which will take me up to Feb. Well until later friend.
Mooing all over
Linda H and Elsie AVR 9/19/12
Glad to hear you are doing well. I loved cardiac rehab and stopped 2 wks ago. I was the youngest there as well, but met a lot of great people who had gone thru similar heart episodes as we have. I hope your trip to see your son was all you expected and then some. Our Matty is well. I owe a blog so keep an eye out.
San Diego is a great place that's for sure. Enjoy the warm weather and time with your son (but let him pamper you also - you deserve it). It's good to stay connected with the people we love and feel normal.
I'm hoping the occular events diminish soon for you. I've had a couple of weird bright white lights appearing, but they went away (hope they stay away).
Have a wonderful time! So glad you are taking time to feel normal again. I have been going to various doctors now since August 10th while they figured all this out. In the middle I got a call to come have my annual Well Woman exam. I told them I would come in after all this settles down because I just couldn't be poked and prodded by one more person! :-)
Connie you cracked me up. My husband was wondering what was wrong with me I was laughing so hard. Now I will probably be thinking of those words next time I see him, which will be the big day.
Hope you are doing good keep up the good work.
Mooving on up
I may be rocking rehab, but I am so exhausted when I get home I crash on the couch. I am concerned the chronic fatige is back I experience pre-surgery. It concerns me that the moderate leak may be getting worse. I am still disappointed that my perfect repair has turned out to be not so perfect. Normal would be nice - lol!
What a merry-go-round you are on with your doctors! I don't blame you for being jupset and frustrated. We all go through enough with our surgeries, and don't need our local doc's dropping the ball on our post surgery care. You have every right to be upset, especially with the possibility of TIA's - they should be right on that!!!
I will try to call you this week one afternoon to try and set something up for us to meet for dinner. We can do an week night or the weekend whichever works for you and Dan is okay with us.
Hey Connie, About the breast pain. Did your Doctor have you where a bra 24- 7? Stephanie was suppose to do that for several weeks. It takes away some of the strain from the girls. I always thought women did better then men cause they do so much sports and lifting etc.Not going to let that stop me. I will prove them wrong lol. I am woman hear me moo remember? Beside have you ever seen a man have a baby except that one freak. I dont think they could handle the pain. lol. Sorry men still love ya and I will need my husband pretty soon.
Any way glad you are doing pretty good. Keep your pom poms out going to need them soon. Meet another surgeon on Thurs. as I get 2. It is more complecated with the anuersym. Oh well until later.
Mooving on up
If it makes you feel any better, I lost vision in my right eye too for about five minutes. It was the day of my first rehab session. I was home making dinner and my vision went gray, like I was holding a piece of cardboard in front of my eye.
Like you, my doc changed my 325mg aspirin to Plavix and a 81 mg aspirin daily. I had a MRA and an ultrasound of my carotid. everything came back clean and the neurologist wrote the episode off to migraine. Unfortunately, during the ultrasound, they found nodules on my thyroid so that's started a whole other issue. I'll be having a biopsy for that soon and hopefully put that to rest.
Glad to hear your chest tube wound are healing. Not going in the pool in the summer where you don't have a whole lot else to do is a bummer!
I got so wrapped up in my cardiac rehab this week I forgot about your appointment - was going to call you on Thursday to see how things went. I would be frustrated too if the nurse did not even know what you were there for - especially after going through OHS - that is unacceptable! Not to mention the distance you travel to see him! I will be praying that our breast infection heals quickly - glad to hear your chest tube holes have finally closed - YEAH!
The sleeping will improve soon as well, especially once you start cardiac rehab. I was exhausted yesterday after my 3rd class. I start each class by weighing in, then hooking up my wireless heart monitor. After a blood pressure check I do a 5 minute walk around the track with 2 pound weights. The treadmill is next for 15 minutes, and then10 minutes on the Nu-step - combination of leg and upper body work out - really kicks my butt - feeling it in the legs and arms this morning! No pain no gain I guess is the saying! Finally I do 5 minute cool down around the track and then the cool down stretching exercises and final blood pressure check. At this rate I will have my "squishy" upper arms toned up in no time - LOL!
Let me know when you are feeling up to it and have your appetite back and the 4 of us can get together in Sidney for dinner one evening.
You are in my prayers - hoping for quick healing of your breast infection. Tell Dan Ric and I said "hello"!
Sounds like you have had your share of bumps in the road. I also had a very sharp pain in the left side of my chest that went into my breast. They told me it was nerve damage. It GRADUALLY got better, but it took about 8 months to completely heal. Not sure if that is what you have or not, but thought I would pass it along. It also took me a good four months before I could sleep on my side without hurting. Seemed like forever.
I hope things continue to improve for you. At least it is behind you!
Hey Connie, Great story. It just shows everyone that there are good days and bad days, and unfortuneltly there might be another one or two, Hope not. Your train on Good Golly Mountain just had to make a stop and get more gas or desel.(SP) I have been thinking about you wondering what happened to you. Anyway glad you are back on track. Do you have a pic of your Grand daughters, might help to have it around.
I know when Stephanie told Cortney what was wrong with me she said. Mommy now you will be twins. Little does she know later in life we will be triplets, but not for a long time hopfully. She found out last year she has a bicupsed aortic valve, but not to worry yet.
Oh well guess I better think about getting ready. Will post later tonight of my fate.
Bless your heart - that is really the pits when you feel like you are going backward instead of forward in your recovery! Believe when I say I know exactly how you felt!!! This hot summer has put a damper on alot of us getting our walks in which really slows down the recovery process.
Thank God for grandchildren. I always perk up when my grandsons or grandaughter come for a visit, even if I am having a bad day. They are my reason for pushing forward in spite of the setbacks. So glad to hear that your's helped you to get your focus back - you can do this!!!
I will call you sometime today to talk. Take care and hang in there! Denise :-)
So sorry I missed wishing you well post-op but glad to log on and see you are home and doing well. Cute pic of you and Denise, glad you got to meet. Have you seen your grandaughters yet? I think the whole US has been too hot to get out and walk...take the time to fully recover and enjoy your family and friends. Again, so glad to hear you did well.
Should I put Matty on a plane to come take care of you and blog for you? LOL.
Hi Connie, so glad to hear you made it home safe and sound. It is a good feeling isn't it? I love your story about the man begging for money - you crack me up - LOL! I know what you mean about the grandbabies - I hated not being able to pick them up and give them big hugs. Working 1/2 days is going well - so glad I did not attempt full time right away with this seroma still hanging around. I have been a little grumpy to say the least wanting it to leave my body so I can get on with my life - ugh! I moved my appointment with the Dayton vascular surgeon to Friday morning as it is really pressing on my sciatic nerve after sitting at work for 4 hours and I have been having some tingling/numbness in my leg which they told me to watch for. I will keep you posted on what the doctor says on Friday. You are in my prayers daily - once you get past the first 2 1/2 weeks you will begin to see a big difference in how you feel so hang in there and enjoy some good books or watch some good movies while you have an excuse lay around. Take care - I will try to call you on Friday afternoon after my doctor appointment. Denise K
Hey Connie, Glad you made it back home ok. Welcome back. Sounds like you were back in Pa as the roads are horrible there.
Well I have been drinking a little more water the last few days. I want those little veins to be nice and plump. But the butterflies are really getting to me. I have been eating not according to weight watchers and still loosing. I think they are eating me. Tomorrow I will probably be horrible. Trying to get some little projects done that I have put off and get a little neaseated (sp). Boy my typing is horrible any more.
Now the work begins Take it easy but walk. Talk to ya later. Call me sometime when you feel like it.
I am trusting that since it has been a couple of days since you posted you are either back home or on your way home today. Please let me know when you are settled in back at home and I will call to chat one afternoon this week once I am home from work. Praying all is well with you!
Connie, hopefully by now you are on your way home or already there, if not, hang in there, each day will get better. Stay active, keep walking, using your spirometer! It will take a little time, but you will be surprised at how much better you feel.
Thinking of you!
Hy Connie, Wow from bedrest to the roof. That is so good. 3 cheers. Sounds like you are flying pretty high right now. Keep up the good work. Stay on that little train going down. I am on the train called LIttle Thomas "I think I can, I think I can".Sunday is a good day to bail out with not a lot of traffice. Keep George "the pillow beside you on the way home. Wear it proudly.Then when you get in your car you can tell your chauffer to go forward James. He'll love that. Have a safe trip. And James dont hit the bumps lol
Hi Connie, Ric posted one of the pictures but could not get his magic tool to work - but you look great anyway! You look 100 times better than I did on my second day after surgery - I was about 100 miles of bad road - LOL! Adam Pick featured the picture on his blog when he got wind that 2 more HVJ members met in person. You will have to check it out. He liked the idea that I referred to us as HVJ sisters! I want to call and talk to you but will wait until you are settled back at home. I know how hectic it is in the hospital with someone in and out of the room all the time - it is hard to have a meaningful phone conversation. I start back to work 1/2 days on Monday and start cardiac rehab on Friday with some restrictions - YEAH! I can finally get moving again! Please take care of yourself and pad yourself with lots of pillows for the trip home. Remember to ride in the back seat - Dan will "driving Miss Daisy" for the next few weeks - LOL!
Hey Connie, Are you giving the doctors a little scare? Now you just stop that lol. Stay on that train on Good Golly Mountain that is headed down. No side trips. Really you just hang in there and get over this little glitch. Hang in there
Hi Connie and Dan: Ric and I really enjoyed meeting you today and visiting with you. Connie, you looked amazing for 2 days post surgery - loved that designer gown - LOL! When we down for my appointment they decided not to drain my seroma, it was actually showing smaller on the ultrasound so they think it is headed in the right direction and advised me to get a follow-up ultrasound and appointment with the vascular surgeon in Dayton in 3 weeks. I will be returning to work 1/2 days for the next 3 weeks until this annoying swelling decides to leave my body! Keep us posted on how you are doing Connie. You are in my prayers! Denise
Glad to hear you are in your own room.....and you even got one with a view! Nice! The rooms are much quieter than ICU, so you should be able to get some much needed sleep when they aren't busy poking you. So glad everything is going well.....you will be home before you know it!
So glad to hear how well you are doing - can't wait to meet you tomorrow and get some pics of you in your designer gown and slippers and sporting your new "bedhead" hair-do - LOL. Take care and keep your sense of humor - it works well with the pain meds for pain control. Denise K
Congrats Connie and family! So happy you have made it to the top of your mountain and can now focus on recovery. The pain control will get much better very soon with the pain pump and pill combination.
A little advice if you haven't heard or read it already, feel free to ask the nurse to place you in a room with a view! The ones facing downtown are quite amazing.
Will be thinking about you and eagerly anticipating the next update!
Connie Now that my brain has returned from mush, here is the cheer (song) I promised you.
Good Golly Mountain
She will be going up the Good Golly Mountain
She will be going up the Good Golly Mountain
Now she is coming down the Good Golly Mountain
Now she is coming down the Good Golly Mountain
while holding on to those green and white pom poms
She will be shaking those poms with excitment as she come to a full recovery on the Good Golly Mountain
Three cheers for you Connie
Welcome to the other side. Hugs
Trying to climb that Good Golly Mountain
Go Connie! Fantastic news... , take all the pain meds you need and your recovery will be better. Your heart needs all the help you can give it to get through the pain, its only beating at over 100,000 (correction) times a day. I'm just a few days ahead and the a speed of change is remarkable although it does not always feel that way. Everyone at HVJ is pulling for you.
Praising God that all went well - the hard part is over now and Connie can get on with recovery. I will continue to watch for updates. Tell Connie I will see her on Thursday. Take care. Denise Kirchner