Yay Carmen....great news. I am really enjoying rehab....they are very cautious with us but I feel good about it because I am getting my confidence back about trusting my heart again!! You are doing awesome...keep up the good work.
Glad to hear you are doing so well. My recovery is going ok too. Im 4 weeks post op. not driving yet but enjoying being "miss daisy" and having a chauffeur :)
Still trying to get used to my mechanical valve ticking but i guess i will. Hope you get on well at rehab.
Take care claire tunmore
Hi Carmen, thanks for signing my HVJ, thought I would return the favor. Hope the pains stop soon. Start the mini walks, believe it or not, it will help. I think of you often and am wishing the best for you. Each day is a new day and generally gets better.
It is good that the surgeon could repair your valve; that makes things a lot better in the long run. Fortunately, my surgeon was able to repair my Mitral Valve as well. He said he had to use every trick in his arsenal to do it, but it is working well. It is truly amazing what they can do!
Recovery does have its ups and downs, especially in the early days and weeks, but even later on also, but things do get better. It may seem like passes slowly now, but it does pass quickly.
I had my mitral valve repaired in 1996 and it is still holding today. I did have to have a second surgery in 1999 when a leak developed around the annulus ring but the repair itself has been doing good. You will start to have more good days than bad. Rehab really helps. But listen to your body, rest when you need it. All the best with your recovery.
Yay....glad you are home and healing. I ran into complications to and was in the hospital 10 days....thought I would never get home! I have done great ever since with my recovery so be encouraged dear girl. You will do great....just listen to your body....and don't over do it. Your body will scream at you!! That is the hardest thing...don't push...it is hard for us gals for sure to not do the things we see that need done. Praying for your recovery. Welcome Home.
Carmen, i was a little worried you hadnt posted anything. Glad to hear you are home! Im 2 weeks post op now and doing quite well. Have been out and about for small periods of time but fatigue gets the better of me :) keep us posted on how you are doing. Take care claire tunmore
Oh thank god. I am crying!!!!! I am so happy to hear you are on the other side of surgery. Sounds like it was pretty rough, and I am sure not any fun. But you did it! Welcome home!!!!! I learned the hard way not to overdo it. Set small goals, walk for 2 minutes, then 3, etc. As I have learned slow and stead wins the race!!!!
Good luck my friend! Keep us posted when you can.
I am glad to hear that you are at home. Take it easy. Don't try to do too much. Let your daughters help you. I wish you a fast and uneventful recovery. It gets better every day, slow but steady.
Jane (10 weeks post-op)
Hang in there, Carmen! My husband had the Ross procedure April 29, 2011. As the spouse, I've been there/done that! My prayers are with you, the medical team, and your loved ones! :) GIGATTAATTGIG (God is good all the time and all the time God is good)!
Gooooo Carmen...praying for you and Mitch and all those having surgery tomorrow. God bless you dear girl....Powerful having hands laid on you. I did and what a moment of peace rocked my body. We are all pulling for you....soon you will be on the healing side of your journey... Hugs. Jamie Todor
Hi Carmen, just wanted to "drop by" and tell you that I will have you in my thoughts and praying for you tomorrow. I know you will do great, I can only imagine the butterflies you must have today. Hope you have someone lined up to give us updates until you can get back to us?
Take care and God bless!
You can do this!!!
Hi Carmen, we are in the home stretch now!!!! Glad you got your testing done. Stay busy these next few days and don't think much about it (at least that is what I am trying to do). I know we both will be fine. Good luck! - Mitch Friedman
I will keep you lifted in prayer, and that GOD will prepare the way for you. You will do excellent, and before you know it, this will be behind you. I am 10 weeks post op and all I can tell you is how great it feels, still need healing but that will come with time. Recovery is a little slow at first but goes by very fast, before you know it you will be posting like me. GOD has great plans for you. Take care Jim
Hi Carmen, we are getting close now! I hope you are holding up well. I have had my ups and downs but feel at peace with all of this now. I just hope that feeling continues. Good luck to you! -Mitch Friedman
So Carmen, your day is getting close. I'm still waiting, so I don't have any advice except for what I have heard from those who have gone before us...they all say the waiting is the hardest part, and as of right now...I believe they are telling the truth! I will be praying for peace and calmness for you as your day approaches. Keep us updated and if you need a good laugh, just read Mitch's journal and guestbook....he is sooo funny, you can't help but feel better about the whole thing.
Take care and let us know how you are doing.
Carmen, thanks for signing my guestbook and letting me know we are having surgery on the same day, albeit on opposite coasts. I will have you in my thoughts. May both our days go as planned and recovery quickly. I think you will be on the mend faster because you are doing minimally invasive. I will be doing a mini sternotomy, 4-5 inch scar.
Hello Carmen, I am a 56 year old male and like you have had a leaky mitral valve for many years. My cardiologist finally convinced me to have surgery and I had successful mitral valve repair Dec 8. I too went through a lot of what you are going through in deciding whether to have the surgery or wait till I became more symptomatic. You can read about my experience on my journal on this site. I wish you all the best and if I can help answer any questions for you, don't hesitate to ask. Venkat Ashok.
Hi Carmen, I have a different problem that you, but I do encourage you to get your valve repaired if possible. Also, I would greatly encourage you, beg you actually, to get at least a second opinion. As others on this site have said, the larger centers are more experienced and better equipped for the unusual things that may come along as well as the usual. From what I have learned, it takes a more skilled surgeon to repair a mitral valve than to replace one, so I encourage you to look up US News and World Report's annual rankings of hospitals. There you will find the top ranked heart surgery centers in the US. Don't just take one opinion as gospel. Nothing against your surgeon, he may be right, but a second opinion can't hurt. Good luck and let us know what, where and when you decide!
HI Carmen. I am going to echo Janis' hope that you have a repair vs replacement. High volume valve surgery centers of excellence have 90% or better repair vs replacement. You want a repair if at all possible since outcomes, both short and long term are possible. If your surgeon is insisting on a replacement I'd advise a second opinion. Many surgeons do replacements because it is an easier procedure and doesn't require as much skill. But a repair is much better for the patient as it leaves the valve's supporting structure intact, which is important for proper cardiac muscle functioning. You are smart though to be considering surgery sooner than later. Asymptomatic patients with severe mitral regurgitation who have repair surgery have age-matched longevity the same as the rest of the population. That's a pretty important outcome to have. You deserve to have that best possible result. -- DVB
I had the same shock at my yearly echo last April. For the last 15 years, my cardiologist told me I was fine, come back next year. Then in April he said I needed surgery right away (huh, what happened?). I saw a surgeon he recommended the next week, but something didn't feel right, so I started doing more research. A good place to get technical information is mitralvalverepair.com. Even if the need for surgery is urgent, it's not such an emergency that you can't take time for a second and even third opinion. You look to be young and otherwise healthy, so you should take the time to get the best medical care you can. In my case, I am so thankful that I didn't go with the first surgeon I saw, even though my husband wanted me to "get it over with." I took an extra 2 months to go to Cleveland Clinic and was able to get my own valve repaired, not replaced, and I have a good chance it will last the rest of my life. I suggest you take your time and make sure you are getting the best care possible. Being confident that you are in good hands has a big impact on your outlook and your recovery, and it's worth the wait. I wish you the best and will be thinking of you as you go through this process. You are in my prayers.
Vicki Pierson, mitral valve repair 6-2-11
I am at 4 weeks after surgery and getting back to normal. Take the time to read journals or stories on this site. You will get a world of information and support. Someday this will be a memory and you will be so happy you did it.
Good luck and keep us posted.