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Double Heart Valve Surgery Patient, Adam Pick, Blogs About
Heart Valve Replacement and Heart Valve Repair Surgery

Archive for June, 2010

Baby Gabe’s Inspiring Story Warms My… Heart

Saturday, June 19th, 2010

Typically, I try to keep anything with political or religious overtones outside of this blog. However, every so often I find myself touched in a way that forces me to bypass this approach (pun intended). That said, earlier today, my sister sent me this inspiring video about Baby Gabriel that warmed my heart and flushed my eyes with joyful tears.

After watching the video, I hope you can understand why I thought it appropriate to share this wonderful story. Thanks to all of Gabe’s doctors, especially Dr. Pedro Del Nido, Chief of Cardiac Surgery at Children’s Hospital Boston.

If you would like to contact Dr. Pedro Del Nido, please call 617-355-8290 or email him at pedro.delnido@cardio.chboston.org.

Keep on tickin’ Gabe!!!

 

Dr. Marc Gillinov Gets 12 Thumbs And 2 Paws Up!

Thursday, June 17th, 2010

Over the past few months, Dr. A. Marc Gillinov, a leading heart surgeon from The Cleveland Clinic, has been incredibly supportive of our patients and caregivers. Not only did Dr. Gillinov host an exclusive Internet chat with our community, but he quickly responds to many of your questions that I forward to him.

Dr. Marc Gillinov And Don Spencer
Don Spencer with Dr. A. Marc Gillinov

Most importantly, Dr. Gillinov is performing successful surgery on our growing family. As a result, my inbox is flooded with patient praise for Dr. Gillinov. That said, I have provided pictures of six patients – Don, Fran, Sandy, William, Sam (and Slater, the dog), and Anita – that have had successful heart valve repair and heart valve replacement surgery at the hands of Dr. Gillinov.

Read the rest of this entry »

 

Recovery Update: Barbara Walters Is “Feeling Great”, Walking Around New York City

Thursday, June 17th, 2010

As many of you know, Barbara Walters had heart valve surgery in May due to severe aortic stenosis.

Like many patients, Barbara has been rather private about her recovery and the details of her aortic valve replacement surgery. While I continue to receive patient emails requesting her surgeon’s name and valve replacement choice (tissue, mechanical or homograft), I often reply with, “Sorry, I don’t have anything new to share since my last update.”

Barbara Walters - Walking After Heart Valve Replacement Surgery

That said, we do know that Barbara Walters is doing well following her cardiac procedure…

Taken directly from her Twitter page, Barbara Walters wrote, “I am feeling great. Love you all!” following her surgery. And, although I feel somewhat silly citing this source, Celebrity-Gossip.net posted these pictures on June 3rd, which allegedly show Barbara Walters on a walk through New York City.

Barbara Walters - Walking After Heart Surgery

If, by chance, I should learn any more details about Barbara Walters’ surgery, I will do my best to share that information as soon as humanly possible.

Keep on tickin’ and walkin’ Barbara!!!

 

Kato Pomer, 92, Has A New Lease On Life Thanks To… The MitraClip

Thursday, June 3rd, 2010

At 92, Kato Pomer recently became one of the oldest, highest-risk patients to receive the MitraClip, a new minimally invasive treatment for severe mitral regurgitation, at Cedars-Sinai Medical Center.

Kato Pomer, MitraClip Patient, Interview With Adam Pick
Kato Pomer, 92, Mitral Valve Repair Patient

Recently, I was fortunate to meet and interview the psychiatrist, the teacher and the artist at her home in Los Angeles, California. Considering the widespread interest in the MitraClip and Kato’s unique story, I thought you might like to review the highlights of my interview with her.

Adam: Hi Kato. It’s wonderful to meet you. I must admit… I hope I look as good as you do if I make it to 92.

Kato: [Smiling] Thank you Adam for coming to see me.

Kato Pomer, MitraClip Patient, Interview With Adam Pick
Kato Pomer with Adam Pick

Adam: To start… I’m curious to know about your diagnosis. When were you diagnosed with severe mitral regurgitation?

Kato: In August 2009, I was on a walk while vacationing in Idyllwild, California when I started to experience shortness of breath. I was rushed to Eisenhower Medical Center in Rancho Mirage where I was officially diagnosed with mitral regurgitation and atrial fibrillation.

Adam: Had you experienced any cardiac problems in the past?

Kato: Yes, I had quadruple bypass about 12 years ago. But, my most recent echocardiogram, performed the previous February, showed no heart valve dysfunction.

Adam: Did I hear you right? In a span of 6 months, your mitral valve became severely diseased?

Kato: That’s correct. It was a very quick progression of mitral regurgitation. No one really knows why. I think it may have been partially triggered by the smoke I inhaled during my time in Idyllwild. There were many brush fires in California at that time.

Adam: Interesting… After you were diagnosed, I assume you were immediately entered into the MitraClip trial?

Kato: [She smiles and raises an eyebrow.] Unfortunately, it wasn’t that simple. First, a pacemaker was implanted to normalize my heart rhythm at Eisenhower.

As for surgically treating the mitral valve, my family was told that someone of my age was “high risk” with a potential 40% mortality rate during open heart surgery. Like many other high-risk patients, I was released from the hospital and went home under the care of my local cardiologist. At the time, I had no idea what the MitraClip was.

Adam: So how did you learn about the MitraClip?

Kato: My cardiologist, Dr. Stephen Berens, at St. John’s Hospital is excellent and keeps up with all the latest research. Upon learning of my situation, Dr. Berens mentioned the MitraClip to my daughter and suggested we contact Dr. Saibal Kar, the Director of Interventional Cardiac Research, at Cedars-Sinai Hospital in Los Angeles.

As Dr. Berens told my family, the MitraClip was my only hope. Without the MitraClip, my time was limited. There really was no alternative treatment option. I later learned that my daughter had already begun planning hospice care for me.


Adam: I did not know about this part of your journey.  I’m sorry to hear it. What happened next?

Kato: Well… Getting into the MitraClip trials was not easy. There are very strict protocols and guidelines that must be followed. So, although I was admitted to Cedars-Sinai as a patient, I was not automatically accepted in the MitraClip study.

In fact, after an echocardiogram, Dr. Prediman K. (PK) Shah, the Director of Cardiology, who had been my late husband’s doctor, broke the news to me that I did not qualify to be part of the MitraClip trial. According to Dr. Shah, the echocardiogram showed that the MitraClip may not properly address the way in which the mitral leaflet was torn.

Adam: So how did you get admitted into the MitraClip study?

Kato: My daughter, Karen, was relentless. She contacted Dr. Berens, my original cardiologist, to update him on my situation. Doctor Berens suggested that a transesophageal echocardiogram (TEE) be repeated under general anesthesia (because it had proved too difficult for me to swallow the probe in previous attempts) as a last ditch effort to get additional information about the valve for Dr. Shah, Dr. Kar, Dr. Robert Siegel, the Director of the Cardiac Noninvasive Laboratory, and Dr. Alfredo Trento, the Director of Cardiothoracic Surgery, to evaluate.

Adam: One more test? How did you feel about the TEE?

Kato: Honestly, at that point, I wanted out of my misery. It had been about six weeks since my valve ruptured and I was ready to give up. But, my daughters would not let me go without a fight. They convinced me to have the one, final test that I dreaded the most. Even though I had to risk the potential complications of general anesthesia for the TEE, the results demonstrated that the MitraClip fix was appropriate.

Adam: How long (in weeks) did it take from your initial diagnosis to the MitraClip procedure?

Kato: In total, it took about 10 weeks. You should know that I also had several infections during this time which complicated the process and forced scheduling delays. During the course of those weeks, I relied heavily on Dr. Ramprasad Dandillaya, my Cedars’ cardiologist for the personalized, expert medical supervision I needed to keep going. Doctor Dandillaya consulted with my family on nearly a daily basis during the time I spent at home waiting for the MitraClip procedure.


Dr. Ramprasad Dandillaya and Kato Pomer

In order to be part of the MitraClip trials, the patient needs to be very stable with no infections or antibiotics for at least two weeks.

Adam: Can you tell me what it was like having the MitraClip implanted?

Kato: It was easier than having the TEE performed. According to the FDA protocol, I was admitted the day of the procedure. I left the hospital about 24 hours later.

It turns out that Dr. Saibal Kar, who has performed more MitraClip procedures than anyone else in the world, used two MitraClips to reduce the mitral regurgitation from severe to mild.

Dr. Saibal Kar With Kato Pomer, MitraClip Patient
Dr. Saibal Kar, Kato Pomer, Asma Hussaini, PA and Dr. Bret Wertman

Adam: Did you experience any pain or discomfort during or after the MitraClip procedure?

Kato: No. Just a little soreness around the catheter incision site.

Adam: How are you doing today? Seven months after the procedure?

Kato: For me, I believe the MitraClip should be called the “MiracleClip”.  As the people around me will attest, I was falling fast before this procedure. The other day, I was at the Santa Monica Farmer’s Market picking fresh fruits and vegetables. All in all, I’m very grateful for my supportive family and the incredible team of doctors who saved my life.

Adam: Thanks so much for taking the time to speak with me. Do you have any final words for those patients who may be considering this type of procedure in the future?

Kato: As for the MitraClip, I would simply tell future patients to “Go for it!”

And… As for you Adam, I want to thank you for your ongoing support of this community. Your heart valve book is a great contribution for anyone who has to undergo valvular treatment. I will recommend it to all of those in need.

I hope you enjoyed this interview about Kato Pomer and the MitraClip. If you are interested in learning more about the MitraClip, please click here. In Part II of this story, you can come along for my observation of an actual MitraClip procedure being performed at Cedars-Sinai Medical Center.

Keep on tickin’ Kato!

 

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