Adam's Heart Valve Surgery Blog
Double Heart Valve Surgery Patient, Adam Pick, Blogs About
Heart Valve Replacement and Heart Valve Repair Surgery

Marathoner, Jarrett Roberts, Discovers “Second Chance” After Heart Valve Repair

March 7th, 2009

There is nothing better than waking up in the morning, putting on my robe and slippers, grabbing a cup of coffee, turning on my computer and reading an inspirational, patient story like the one below. Plus, Jarrett’s thoughts about the “waddling penguins” and the “Adam Tinmen” made me giggle. That said, I thought you might like to read about Jarrett Roberts. He writes:

Hi Adam,

Valentine’s day – with the emphasis on love and hearts – has taken on a new meaning to me and my wife as I am on day 22 of my “second chance at life” as I had my bicuspid aortic valve repaired by Dr. Bruce Lytle at the Cleveland Clinic on January 23, 2009.

Jarrett Roberts - Marathoner And Bicuspid Valve Repair Patient
Jarrett Roberts – Arctic Marathoner And Valve Repair Patient

I found it interesting (at the Cleveland Clinic) to be one of the younger patients in for surgery.  The nurses were all excited that a 6′ 7″ marathoner – I’ve done 83 including Antartica in 2005 – was in for surgery (as they normally get the unusual heart valve cases that other clinics won’t touch).

My bicuspid aortic valve was accidentally discovered less than two years ago during a routine cardiac calcium CT that was misdiagnosed as an aortic aneurysm.  The follow-up tests showed that the radiologist had flipped the numbers and I didn’t have an aortic aneurysm. However, I did have a bicuspid congenital defect of my aortic valve.

The cardiologists at the Cleveland Clinic were amazed that it hadn’t been discovered before, but after their tests said that the “mumur” was one that was almost impossible to detect.  Sometimes medical screw-ups are a blessing in disguise. In October of 2008, I was given 9-12 months to live without correcting valve surgery.

I have found the biggest difficulty during recovery is wanting to do more than I should and holding myself back.  However, from doing marathons, I know that I have a long road ahead and I will eventually make it to the finish.

I begin cardiac rehab next week and have re-read your chapter on that again for insights.  I hope to rebuild my endurance to eventually do another marathon later this year or early 2010.  Eventually I would like to finish my goal of completing a marathon on every continent and 100 career marathons.  The Cleveland Clinic cardiologists said if I mainly walked them it shouldn’t be a problem, especially since I’ve did 83 marathons prior to the discovery of my bicuspid valve.

My wife Kara and I have already signed up for the Coronado Bridge 4-mile walk on May 17, 2009 in San Diego as my first official post surgery race.  We are celebrating our five year anniversary and are staying at the Hotel Del Coronado for the weekend. It might be cool to get a group of your readers together for the walk. Just a thought. :)

I was curious.  I have been a long time follower of John Bingham (a famous marathoner and editor of Runner’s World magazine) and am one of his “waddling penguins” (those of us marathoners at the back of the pack).  Do you have an affectionate nick-name for us fans of your book and blog (i.e., Adam’s Tinmen and Tinwomen)?  If not you should think about getting one for us. :)

Anyways, I just wanted to send a quick email thanking you for your great heart valve book and website which has been a tremendous help during the past six months.  You helped my family and I know what to expect and make the “journey” less challenging.

Thanks again,
Jarrett Lee Roberts
50 State Marathon Finisher, Divemaster, CPA, Father of Two Active yet Wonderful Boys, Husband to an Incredible Wife and Bicuspid Aortic Valve Repair Recovering Patient

About The Author: Adam Pick is a double, heart valve surgery patient and author of The Patient's Guide To Heart Valve Surgery. This unique book integrates clinical research with the personal experiences of 135 former patients to help future patients and their caregivers better understand the problems, the opportunities and the realities of heart valve surgery. To learn more about Adam and his heart valve surgery book, click here.

4 Comments... Click here to add one.


Cindy says on March 8th, 2009 at 1:13 pm

Hi Jarrett,
I too am finding that I want to do more than I can or should at almost 5 weeks post op. I will begin cardio rehab this week too. I have horses & ride near the beach here on the Central Coast of California. I have a trail through my property for other riders to use for access to the state park & beach … I want so badly to get on my horse & GO!! For now … I do laps around my home & barn & try to keep my chin up when I see others riding out … We shall get there in time & like you I can’t thank Adam enough for all he does … it has made this process SO MUCH easier for me … just knowing what to expect. What a comfort in confusing times!!

 


Gregg Pearlstone says on March 14th, 2009 at 12:14 pm

I was recently diagnosed with a bicuspid aortic valve and a slightly enlarge aorta.
This is all very new to me. Kind of through me for a loop. I have a family history of heart problems, but did not know if their problems had anything to do with a bicuspid valve. I understand it is hereditary. Anyway, as a result, I have stayed very focused on exercise. I have been an active runner for almost 30 years. Kind of ironic that I find out after all this time that my heart problems would come as a result of a birth defect.

I am interested in learning more about what to expect. I am to go in for either an MRI or CT scan to complete the evaluation of my situation. My current doctor also has me scheduled for follow up echocardiogram in 6 months to check for any more enlargement. I guess he wants to establish some sort of baseline. Any feedback anyone wants to share on this subject would be appreciated. I do intend to buy Adam’s book to better educate myself. Glad I came across his website while surfing for other information. I am also very interested to see the surgeon database. Assuming it will be a while before the list if built up enough for use. If I am mistaken, please advise. I am also curious as to other’s feelings about a second opinion. I am sure this is the right thing to do, just don’t have any experience with this from my past.

Regards,

Gregg Pearlstone

 


Winona Blake says on March 14th, 2009 at 4:36 pm

Hi Jarrett,
I can relate that you want to do more and the frustration of having to hold back. I am 71 yo and had Mitral Valve repair at Cleveland Clinic Sept 2008 by Dr Milhaljevic. I found Cardiac rehab very helpful, and thank Adam for encouraging us to do that. While in C Rehab, I found my longterm means of exercise/conditioning, the indoor rower. I have been using my own for the past 2 months, and attempted this month’s challenge and learned that I overreached – got tired, dizzy, etc, so listened to my body and backed off to rowing less distance. I find it frustrating that my mind wants to GO, and my body isn’t ready quite yet.
Learning that it really does take a full year to fully recover. My MD said that is because the scar for the open heart surgery needs that time, as the heart muscle cannot ever rest to speed healing.
Good luck.
Winona

 


peter willard says on April 8th, 2010 at 12:16 pm

I would like to know what kind of valve jarrett roberts had put in.I’m 67 male and had a cow valve put in.
thank you

 

Leave a Reply

(required)
To prove you're a person (not a spam script), type the answer to the math equation shown in the picture. Click on the picture to hear an audio file of the equation.
Click to hear an audio file of the anti-spam equation

  #1 Recommended Book
  For Patients & Caregivers