Adam's Heart Valve Surgery Blog
Double Heart Valve Surgery Patient, Adam Pick, Blogs About
Heart Valve Replacement and Heart Valve Repair Surgery

Severe Aortic Stenosis – Definition, Symptoms, Surgery & More

January 30th, 2009

Wow! Talk about a response!

The comments and emails for “Heart Valve Stenosis – The Severity Of This Valve Disorder” have been non-stop for the past 24 hours. Thanks to everybody for sharing your thoughtful ideas, patient stories and questions. It’s great to see everybody participating in this discussion about aortic stenosis.

Aortic Valve Stenosis
Aortic Valve With Severe Stenosis

As I previously wrote here, I was alarmed by the mortality rates presented by Dr. Hong. From your comments, it appears you shared those feelings. To help, here is some additional information specific to severe aortic stenosis as they relate to your questions and comments:

For clarity on the definition of severe aortic stenosis, I emailed Dr. Eric Roselli, heart surgeon at The Cleveland Clinic, to get his expert opinion on the use of this term.

Eric Roselli, MD - Heart Surgeon, Cleveland Clinic, Ohio
Eric Roselli, MD – Heart Surgeon
The Cleveland Clinic

Doctor Roselli referenced the AHA/ACC guidelines for heart valve therapy in which the severity of aortic stenosis is defined by valve area, velocity and gradient. The following table was posted at The Cleveland Clinic’s website.

Guidelines - Diagnosing Aortic Stenosis

As the chart demonstrates the severity of aortic stenosis is segmented by the following:

  • Gradient. A normal aortic valve has no gradient. If the aortic valve mean gradient is <25 mm Hg, the stenosis is mild; if the mean gradient is between 25 mm Hg and 40 mm Hg, the stenosis is moderate; if the mean gradient is >40 mm Hg the stenosis is severe.
  • Valve Area. A normal aortic valve area is >2 cm2. If the valve area is between 1.5 and 2.0 cm2, the stenosis is mild; if the valve area is between 1.0 and 1.5 cm2, the stenosis is moderate; if the valve area is between 0.6 and 1.0 cm2, the stenosis is moderate-severe; areas of less than 0.6 cm2 constitute severe aortic stenosis.
  • Aortic Velocity. As for velocity, mild stenosis is between 2.5 and 3.0 m/sec; moderate stenosis is between 3.0 and 4.0 m/sec and severe stenosis is >4.0 m/sec.

As Dr. Hong used the term severe aortic stenosis in his report, I am hopeful he used similar criteria for for his research – although I cannot confirm that because I don’t know Dr. Hong nor have I reviewed the methodology of his study.

Regarding Roberta’s point about the need for aortic valve replacement only when symptoms manifest, I believe it is critical to remember the every patient case is different.

“Why does Adam say that?” you may be wondering.

Well… I think back to my situation. I had only ONE symptom manifest prior to my aortic valve replacement. Yet, my heart was already dilated and my echocardiogram showed a very diseased valve. And… When two different cardiologists and two different surgeons reviewed my echo all four physicians were in a calm shock that I was not more symptomatic.

I’ll never forget what Dr. Starnes said to me during my first exam at USC. Doctor Starnes said, “Ummm…. Adam… Are you sure you haven’t had any symptoms like shortness of breath? You haven’t, maybe, fainted lately? Become dizzy at all? Or, anything like that? Because your valve is in really, really bad shape.”

For me, the signal was loud and clear. Waiting around for symptoms to manifest could have been catastrophic, if not, deadly. I like what Carol wrote in her comment. She stated, “The determination about when to surgically intervene with AS is “all about the numbers”, rather then the symptoms. My numbers were “stable” with moderate aortic stenosis for 11 years, then in my 6 month followup echo I had progressed to severe aortic stenosis. I had never felt better in my life! The way it was explained to me was really rather simple. Years ago, it was very common for people with AS to present to the ER with “Sudden Death Syndrome”. Once the valve becomes so stenotic, all the CPR & cardiac drugs in the world won’t resuscitate you! Your heart just won’t pump. Be thankful that we have the technology to monitor this before a cardiac cath & surgery are indicated.”

Again, I would stress that every patient case is unique. Please consider that as you evaluate your own diagnosis and the possibility of surgery to correct heart valve stenosis.

I hope this helps you digest some incremental thoughts on the topic of severe aortic stenosis. Like I originally noted, this data was quite alarming to me. I hope it helps others prevent any serious health issues going forward.

Thanks again for your comments! If you have any other thoughts, please click here!

Keep on tickin!

About The Author: Adam Pick is a double, heart valve surgery patient and author of The Patient's Guide To Heart Valve Surgery. This unique book integrates clinical research with the personal experiences of 135 former patients to help future patients and their caregivers better understand the problems, the opportunities and the realities of heart valve surgery. To learn more about Adam and his heart valve surgery book, click here.

15 Comments... Click here to add one.


kathleen Fischer says on January 30th, 2009 at 4:24 pm

Hi Adam – Thank you for all of the information and optimism. I have a question. I have aortic stenosis which was diagnosed in September after a routine physical. I am in the moderate range and am not sure if i am totally without symptoms because i am occasionally dizzy but only slightly. My question is why is it necessary to wait until the severe stage is reached to have valve replacement surgery? Would it not be beneficial to do the surgery in a somewhat ‘preventive’ manner. The information in the January 28 blog from Dr. Hong was troubling. Is it imperative to get sicker before one can be made well?

I live in Chicago and am working with Loyola hospital. I have not gotten a second opinion yet. The waiting just seems counter intuitive to me. If you know of any resources that might answer this question I would appreciate it. Once again thank you for your kind support and positive outlook.

Kathleen

 


Kerrigan says on January 30th, 2009 at 8:56 pm

At two months prior to operation my stats were aortic valve area of 0.8 mean pressure gradient was 49, and the maxium volocity was 4.6. First opinion wanted me to come back in six months for a re-check because I didn’t show symptoms. Lucky we got the 2nd opinion who said “now!”. Lesson: no symptoms condition can be very misleading. the stats tell the story.

 


Joe W says on January 31st, 2009 at 10:33 am

After being diagnosed with moderate AS, my valve remained stabel for about three years with an opening around 1.0 sq. cm and it was decided to go two years before my next echo. I was having no symtoms and was told that AVR was inevitable but putting it off as long as reasonably possible was the way to go.
Last Oct. my new echo showed a measurement of .65. Wow, what a change! My only symtom was slight shortness of breath on occasion which I figured was probably normal for a 55 year old guy in good health. My dr. said I should consider AFR within the next six months. A 2nd opinion suggested the same thing. I had surgery at Cleveland Clinic on 12/29 and recovery is going great.
I think the general thought is to put off AVR as long as reasonably possible because regardless of wheather a mechanical or tissue valve is used, there are down sides to consider over the remainder of our lives. Valve degredation doesn’t happen over night and once diagnosed, there is usually time to have a tentative plan in mind for when you have to decide. In my opinion, diagnostic technology is getting so good that doctors usually have a safe window to work with you until surgery is absolutely necessary. Although an added cost to the health care system, I still think a chest echo should be a must for all people in order to get a baseline even when they are asymtomatic. More lives could be saved.

 


Barbara Johnson says on February 14th, 2009 at 4:39 pm

Adam or anyone, Could you recommend a heart surgeon in the KC area? I must find one within 30 days for an aortic valve replacement. Please. Barb L.

 


johnny carter says on February 19th, 2009 at 3:37 pm

hi. my name is nicole carter. my husband johnny, had his aortic valve replaced nov.19,2008.he owns his own business hes a contractor. he has built homes,metal bldg. ect. ALL his life. he began with his dad when he was just a boy. he has always been active(he turned 52 in dec.)working 6 days a week very physical, always on the go. he also drag races. now days since his surgery he dont want to do anything.it takes all hes got to take a shower. he dont sleep @ night. he wakes up every 45 min. he dreams constantly, wich makes him wake up.he never had symptoms of aortic stanosis only a murmur. he broke his hip last nov.2007 and had screws put in, so he was down 3-4 months & in the process tore his rotatorcuff in the process. we went in for a clearence from his cardiolgist & the next thing we know hes having his valve replaced by a cow valve. hes also diabetic. they put him on zocor, & topral for his heart. how can he get past this depression, he has no emotion. he says he dont feel like himself @ all. he has no zest for life anymore. could it be the meds? or the combo. of meds hes on? im really concerned about him. he just has no energy, no want to. any suggestions from anyone id appreciate. my e-mail jandncarter5113@yahoo.com

 


Steve Rutledge says on May 31st, 2009 at 3:25 pm

Two months ago I visited 2 different cardiologists to read my latest echo. My aortic valve area was measuring at .70 cm2 and my pressure gradient was 43 mmHG. One doctor (a valve specialist) told me to come back in 6 months for a follow up. The second cardiologist took one look and said “Cardiogram first thing tomorrow morning and meet with the surgeon in the afternoon”. Guess who I listened to! It will be 6 weeks tomorrow since my operation. Stephen R.

 


Sherry says on August 5th, 2009 at 2:00 pm

Adam, I have read and returned for reference to your book numerous times over the last two months. I am still in a “moderate” range of stenosis from a bicusbid valve, and am working through some 2nd opinions, etc. Thank you so much for posting the guidelines for severe stenosis. I have looked through Mayo, Cleveland Clinic and other sites and have had great difficuty in locating specific answers to what the numbers all mean. Your post is very helpful to me as I am looking over the three echos i have had in the last three months. This blog and your research are valuable resources for those of us facing this surgery, whenever it may need to occur. Sherry

 


yvonne says on January 29th, 2010 at 4:59 pm

my mother in law is 84, she just had a spell with conjestive heart failure. the cardioligest reccomended valve surgery, her aortic valve is leaking, and he said that was part of the cause, can u tell me the motality rate for a 84 year old woman, usually active.

 


Kathy J says on January 29th, 2010 at 11:40 pm

I have a bicuspid valve and was on an every 6 months echo schedule with my cardiologist. I started having shortness of breath upon climbing stairs after 39 years of no symptoms other than my murmur. Two weeks ago I went for an echo and it showed significant changes from the one I had November 2009. I then had my cardiac cath Wednesday Jan 27th 2010 and am scheduled for a TEE on Feb. 8th. I am concerned because my cardio could not find a wire/cath small enoughto fit the camera in my aortic valve to take a measurement. I am concerned because I think that if he could not get the measurement that that would be indicator enough to go on ahead & schedule my AVR. Any thoughts, anyone?

 


HAL says on January 30th, 2010 at 6:43 pm

I hear anxiety in your blog post and can empathize with you. At the age of thirty-five, my Aortic valve failed due to congenital aortic stenosis. My first concern was the surgery that was eminent, followed by; what type of life am I going to have with a man-made heart valve. That really translates to “will I be able to watch my sons grow up”? It has been 25 years now, and I am 60. My check ups with the cardiologist is now every 6 months due mainly to my age. I have a mechanical valve and take coumadin daily. This amounts to a finger prick once a month. Unfortunately there is no “if” for you, only a when. Do your own research and pick your own type of valve before your valve fails. Do not let an aversion to coumadin drive your decision. If coumadin were not safe, the FDA would not let it be used. There are more patients in Atrial Fibrillation on coumadin than mechanical valve recipients. Research the mechanical valves as well as the tissue valve.
HAL

 


Sarah Murray says on March 8th, 2010 at 3:13 pm

i am 16 years old and am about to undergo my third open heart surgery for aortic stinosis….i got an assignment in english class telling me to research open heart surgery so of course i research what type of surgery i need which has lead me to this site and im glad i read it although i am still scared and everything im fairly happy that im a little more informed what confuses me is i dont understand what all of the valve area stuff is i guess i have a question to ask my cardiologist next time i visit since i am 16 and havent had a surgery since i was 6 years old i dont exactly know what to expect in the recoup which is whats scareing me the most if someone could e-mail me or something with help on what to expect with the recoup of a homograph valve replacement it will be much apreciated thanks

 


Barbara Morris says on May 9th, 2010 at 7:14 pm

I’m a 52 year old female, with a rapidly approaching surgery date of June 1 for aortic valve replacement. I am trying to be very positive about things. I am relatively young for this type of surgery, I don’t have any other health issues, my surgeon and hospital have an excellent reputation with this type of surgery, but I am still nervous. I go through periods where I think I read too much about the surgery & just want to think about anything but it.
Any tips with respect to facing the nervousness??? I feel that I’m well educated and would like to avoid more reading if at all possible.
Thanks!

 


Rowena Macadangdang says on May 14th, 2010 at 4:23 am

Hi, my daughter Anne was diagnosed in June 2008 with aortic stenosis. We have been into regular monitoring of her heart thru 2decho, and during the last check up with her doctor in Feb this year, we were advised to visit again in July and be ready with the money needed for the operation. The gradient that the Doctor was saying was already about 76%. We are still praying and hoping for a miracle. Sometimes she will suddenly feels hot for no apparent reson (no flu, no cough whatsoever). Is this one of the symptoms to watch out for? Is she really to be operated on with this latest finding from the doctor? Please help us to be enlightened more with this congenital heart disease. thanks

 


Alan Blain says on November 4th, 2010 at 4:34 am

I’m a 55 year old male living in South Africa who had a metal aortic valve replacement on Oct 18th, 2010. Makes me feel a little silly to say I do not know the make or model, all my surgeon told me was he gave me nice large one. I’m 6’2″ and over 200 lbs so he figured I needed a fair size. Like many folk I read about my synptoms were mild breathlessness, some light headedness when under stress, and an episode of water or frothy stuff on the lungs after heavy excercise. I passed this all off to being unfit and getting older. However a precautionary visit to my G P led quite quickly to my surgery. I started my family real late and have a youngest son of 8 yrs. Hal, thank you for giving me the courage to know that if you can make it for 25 years with your new valve, so can I. My recovery is going well and suddenly feel really confident and ready to go back to work (we own three restaurants). I want to encourage all those out there who are unsure of what to do, to have the procedure done, Once you reach the severe stage, you only have sudden death to look forward to. Since surgery, everything has been new and I am so much more appreciative of my life, my Wife my family and my faith. Medical science rocks!

 


Dawna Wickdahl says on November 4th, 2010 at 10:49 am

Morning,
I had my valve replacement done on Sept. 24/2010 in Victoria Canada,
I chose a St Judes Valve… although it has only been a total of almost 6 weeks since my surgery date,, i feel great. i am 48 years old.like allot of you. i had stenosis due to a bicuspid valve. born that way. this is my second surgery.. i had what was called.. coartation of the aorta,, which means. a narrowing of the aorta and thy fixed it. i was 8. so 40 years between surgery’s, not bad. i am not to happy with the fact of the labs 2 a week right now or the fact i am on warafrin, but i will get used to it.i to have days that i regret my decision on the valve choice but, what i hear, that is normal.. it don’t think it is depression, but i think i just have to much time on my hands right now… i start rehab tomorrow , so as of next week, my days are filled… I just wanted to say. i am glad i did this , and i really had no choice, and yes your live as you knew it will change. for the better… Me being me, i asked the surgeon, “what would happen if i don’t get this done”… he looked me in the eye and said.. very matter of factly.. i might ad…. bedside manner was not his best traight…. ” u have maybe three years before your heart will fail.” okay then.. next question was.. can i still go to Mexico dec. 11… yes as long as everything is going good and i don’t do anything..meaning don’t leave theresort… no problem there. last question i asked,, can i postporned surgery till the end of march 2011… i got a quick. “NO”… with in thre weeks of that first meeting i was in the hospital.I am looking forward to feeling better and working out again… and getting back in to life…. a new life. enjoy life, it is beautiful here on Vancouver island today..

Adios
Dawna

 

Leave a Reply

(required)
To prove you're a person (not a spam script), type the answer to the math equation shown in the picture. Click on the picture to hear an audio file of the equation.
Click to hear an audio file of the anti-spam equation

  #1 Recommended Book
  For Patients & Caregivers