Comments on: “Were You Anxious Before Heart Surgery?” Asks Ann

By: Ms. Bernaclis Churchill

Ms. Bernaclis Churchill — Wed, 01 Dec 2010 15:26:39 +0000

I too, have had a second opinion, and my second opinion did nothing to relieve my fears and/or questions. My EF is 40%, which is not normal, normal is 50% to 65%. My primary cardiologist, has not in my opinion been very good at monitoring my condition, because he only mentioned the 40% last year, and I have been seeing him for at least 2 decades. He gave the second opinion Dr, very little to go on, virtually no records at all to look at. My primary cardiologist, says that I have mod to severe MR, the 2nd opinion guy says moderate, but never mentioned the EF at all, and didn’t mention it in his final report, either. I am totally exhausted at the end of the day, and I feel as if I do not get enough sleep, thus I’m dragging all day, but I have felt this way for a long time, thinking that it was menopausal, that when asked, I never thought it was due to my MR, simply because my cardiologists never said anything i.e. that it can produce these symptoms. Also, neither cardiologists never recommended a surgeon, either, but my first cardiologist stated that I need MV repair. I feel as if I’m just being played with, and taken for my money when I go to see them.

I friend of mine stated that I should let them know how unprofessional they are both being, and press them for answers, since this is my life, and to stop playing games.

By: Dale P.

Dale P. — Sun, 06 Dec 2009 20:42:49 +0000

I found out on 10/14/09 that I had a bicuspid aortic valve, and a \”stretched ascending aorta\” (a.k.a. an aneurysm). I had my surgery on 11/2/09. That two and a half weeks was really intense, during which I felt alternately very anxious and numb. My primary care physician was very supportive, saying that it would be abnormal not to feel anxious. She also prescribed a mild anti-anxiety medication so that I could sleep. I also took something the day before, but mostly, during my waking hours, I had plenty to do to prepare, and was okay.

By: Sarah Williams

Sarah Williams — Sun, 29 Nov 2009 07:52:17 +0000

I am 43 and scheduled to have my aortic and mitral valves replaced in Houston January 5th. I am very anxious waiting and my emotions come on quickly. I have had stenosis my entire life but have not had symptoms until recently. Currently my aortic valve is .3 and the velocities and gradients are severe (can’t recall the exact numbers right now).

I worry that I will not make it through the surgery. I have had numerous other surgeries and have never felt this fearful. I think its due to now being a parent. My husband and I have 7 and 9 year old daughters and I think my fear is worse because I am concerned about them.

Does anyone have suggestions for how to talk to kids about this surgery and how to help them cope with their fears? We are working on our care plan for them while my husband and I are in Houston. They will stay home in Austin with their grandparents. We are trying to keep their routines as “normal” as possible. Still I get very emotional thinking about what they are going to go through and I will not be able to help them.

Thanks,
Sarah

By: Micki K-N

Micki K-N — Sun, 26 Apr 2009 15:15:24 +0000

I am scheduled for surgery on May 21st. I have a bicuspid aortic valve as well as an aneurysm in my ascending aorta. I always knew about the valve but the aneurym was a surprise. I went to the emergency room only because my doctor had left the office. I have been undergoing major stress and thought I was just having a panic attack. I was shocked by my diagonisis, as well as hearing how large the aneursym is. I am not too apprehensive about the surgery, as I am going to the best hospital in Chicago, and the doctor who is performing the surgery was originally at Cleveland Clinic. My biggest concern is the after care, as I live alone. Reading everyone’s comments has give me some peace of mind. thank you.

By: Lou Ann Marler

Lou Ann Marler — Mon, 26 Jan 2009 04:36:13 +0000

Thank you all for your comments, they help so much … THanks again!!!!!!!!!!!!!!!

By: Mary

Mary — Sun, 25 Jan 2009 21:52:28 +0000

I am 3 months post-op for mitral valve repair and I must tell you that it is worth it! I spent over 50 years being afraid of what I could not do . . . run, bike, compete . . . well, you get the idea. Now I have no limits as I heal. For the first time, at cardiac rehab I feel safe walking on a treadmill and biking on the stationary recumbent. By mid-October last year I felt like I was breathing thru a blanket – - awful. Now I feel like there is enough oxygen in the air – - sooo good. The fist ten days were tuff but the nurses & staff at Mount Sinai in NYC were always there for me with meds for pain or an upset stomach and I can be such a baby yet they were always compassionate and I was always appreciative. You can do this.

By: nancy mallinger

nancy mallinger — Fri, 23 Jan 2009 21:42:40 +0000

I waited 8 month between when I was told I needed aortic valve replacement IMMEDIATELY and when I had it. I saw 4 cardiologists and two surgeons, and they all gave me different opinions. I was totally asymptomatic and refused to be rushed. And then, like Mary who commented here, I ended up having my surgery at the Cleveland Clinic. I was incredibly stressed for all that time before–couldn’t think about anything else, didn’t sleep well, had shingles and stomach cramps. Xanax did help some. And, finally, I just wanted to get it all over with. The best part of being post op is not having that stress any more.

By: Sherri Hendry

Sherri Hendry — Fri, 23 Jan 2009 19:44:51 +0000

Ann,

I too was anxious when I found out that I might need surgery this past summer. The anxiety between waiting for the next round of tests that would determine my fate was incredible. Once finding out in the fall that it was time…A huge wave of emotions struck me. I cried, I was angered etc. Then I came out of it and said no big deal. Then I met w/ the Surgeon in November…that night I lost all. I needed to. I had been on the brink of a major anxiety meltdown but was pushing it aside saying no big deal, but after the first meeting w/ the surgeon, I couldn’t hold it in anymore. With that being said, and tears being shed, I felt more in control. I felt I could face it better. Get a better grip. January 7th I had my minimally invasive mitral valve repair surgery. All went well. I laughed my way into the operating room – and laughed my way out on discharge day. (even though laughing hurts after surgery – it was a sacrifice I was willing to make.) I am recovering well. I feel so glad I went and had the operation. I’m sore sure everyone is sore after any type of surgery, but the outcome if I had not had the surgery….don’t want to think about it. Just feeling blessed my problem was found while I could do something about it. Just know that you are not alone. We are many. Take care.

By: Lou Ann Marler

Lou Ann Marler — Fri, 23 Jan 2009 19:23:49 +0000

I am so anxious I dont know what to do. I too had a second opinion and he says , well he would wait six months, and then mabee 50/50. My regular cardiologist has already called the surgeon of my choice and surgery is scheduled on Feb. 4 th. I just heard the second opinion last night. One says my aortic valve is moderate to severe and the other says moderate, both believe I need surgery , mine thinks now good and the other says be rechecked. My insurance has already authorized this one , so now what does a person do if the two Dr’s have conflicting time schedules. Talk about stress , it has increased my already bad blood pressure ten times over. Any advice at all, or should I just stop everything and start all over again.??????? I know no-one can give medical advise, but am i just so scared and confused because of the two different opinions. Actually the surgeon I picked due to a few referrals, I don’t get to meet until the day before my surgery. He called me on the phone. We live three hundred miles away and thats how its set up at the heart center of the rockies. By the way I have all my children already flying in on the second and five siblings coming from out of stateas well. Oh what a mess. They all would loose their money for the tickets because they bought them on the internet. Nothing like pressure. All because Of this second opinion who called last night. I did like the physician, but now what…..

By: Rebecca Roberts

Rebecca Roberts — Fri, 23 Jan 2009 16:41:20 +0000

Ann:
I had to wait about 6 weeks from the visit with my surgeon, until my surgery for mitral valve repair on 1/5/09.
Initially, I actually began worrying about how I was going to control my worry in the final days prior to surgery!
I successfully used much positive self-talk: reminding myself about how confident I felt about my surgeon and hospital choices, reviewing all the positive stories from others who had valve surgery, focusing on how much better I’d feel after surgery, viewing the surgery as an opportunity for personal growth,etc. I prepared for a negative outcome by updating my will,etc, and then never entertained those thoughts again.
I had very little anxiety right before the surgery as I was just so ready to get it done!
Now, 18 days after my surgery, I would say that the waiting was one of the most difficult aspects of this experience!