Comments on: I’m The Target! Please Criticize Me And My Blog!

By: Maribel

Maribel — Sat, 02 Aug 2008 19:39:42 +0000

Dear Adam:

I think your blog is great!!! I like the fact that is very specific for heart valve disease, that gave me the confidence to buy the book when Sergio was first diagnosed. I navigated a lot of othe heart disease sites but none of them were so specific as your blog so when I found it I just stayed here. The chat feature will be great because even though Sergio is doing just fine now I still check out everything in your blog and I found myself comforting people with the same worries I once had and in the chat mode could be much easier than having to wait and see if they read your comment and answer it.

For Bill: I was so happy to see you are ok!!!! I had an ovary surgery the next day you had your heart surgery and I was thinking all the time how you were!! I searched the thread of you choosing valves but found nothing new. I hope youre having a good recovery and don´t be a stranger ok? Hope you see this.

By: Nancy

Nancy — Fri, 01 Aug 2008 04:17:29 +0000

Adam, I am so glad that I found this website. I will have the surgery in November 2008 and am so glad to hear from others that are asymptomatic. I still cannot believe this is happening to me. This blog will provide much support once I have the operation. The blog is great and you do a great service to us all.!! Thanks

By: Becca Allison

Becca Allison — Thu, 31 Jul 2008 20:00:29 +0000

Adam,
I agree with Bill and Joan about finding ways we can communicate. I would like to see a scheduled chat, maybe once a week – to avoid being disappointed when there’s no one in the room. I’d be willing to talk to those anticipating surgery or just post-op.
Becca

By: Joan Keilman

Joan Keilman — Thu, 31 Jul 2008 14:45:41 +0000

Adam,
Sometime you might include e-mails for patients who give you permission and are willing to talk to other patients anticipatring surgery or are in the recovery mode. Also you might put some guidelines as to how to choose a Surgeon and /or a hospital. I know some of this is in your book but I personally would like more info. I do like your reports on research etc. Keep up the good work!
Joan Keilman

By: Gayla

Gayla — Wed, 30 Jul 2008 23:39:52 +0000

It helped so much to read your book prior to my husband’s aortic valve replacement surgery. Thank you – thank you! Additionally, the promptness with which my order for the book was handled was phenomenal. The blog has many helpful comments, and I, like many others, cannot find anything negative to address. The insight that your book provides is invaluable. My husband is 4.5 weeks post op and that 4th week has been MUCH better.

By: Bill

Bill — Wed, 30 Jul 2008 22:01:55 +0000

The only recommendation I have is to include a chat feature. I am now 10 weeks post op and doing well. It would be nice to log in and see who else is online and say HI…

By: Becca Allison

Becca Allison — Wed, 30 Jul 2008 16:28:39 +0000

Adam,
While I’m sure there are things you can do to improve the techie side of this blog, on the personal side you are doing great! For those of us who faced surgery, your book and this blog were so helpful in calming our fears. And I am enjoying being able to help others who are facing the surgery through this blog.
I am one week and a day past aortic valve replacement, and I feel great – still some (manageable) pain, but getting better every day. I laugh every time I try to open a jar or drink bottle and remember your advice about having the family pre-open them! So practical!
Niki, I will be praying for you hard this Friday – don’t worry, it will be fine. See my advice to Rosie in the section “Were you Asymptomatic…?” Winona, you too! We are a bunch of tough broads and we are gonna be unbeatable with our replaced valves! Not to leave you guys out – love you, too!
Open heart surgery has been done for over 25 years – folks, they know what they are doing! Don’t worry – be happy! It’s well worth it!

By: DougR

DougR — Wed, 30 Jul 2008 14:48:11 +0000

I had my aortic valve replaced with a mechanical valve in 1991 at age 42, I was asymptomatic at the time and running 5 miles a day. In a routine physical they discovered regurgitation. The noise was so clear that every where I went for exams/tests, the Dr asked if they could bring in the interns to illustrate the type of noise they should look for for this problem. I should have charged for the show!
Anyhow, both my cardiologist and the surgeon that I chose recommended an artificail valve as the tissue valves have a limited life much shorter than the mechanicals and b eing in my early 40′s, they wanted the maximum time between replacements that they could get. Surprisingly, I agreed. Taking coumadin is a pain but it beats extra surgery.
I came to this blog now, because I’m having some symptoms that may indicate I’ll need to have this replaced again and I was looking for some inforamtion and experiences that people might have had around issues/complexity with replacement of an earlier replacement valve.

By: Winona Blake

Winona Blake — Wed, 30 Jul 2008 03:46:22 +0000

Hi Adam,

I am very new to your website and blog. I am so grateful I found it, as I have been feverishly researching about mitral valve repair since I was informed that I need it done.

My only constructive comment would be that I don’t know how to navigate to find the different blog threads. Such as, I cannot find how to get to a thread from last night on profiles on surgeons.

Thank you. I am eagerly awaiting the arrival of your book.

Winona Blake

By: Niki Reis

Niki Reis — Wed, 30 Jul 2008 02:15:03 +0000

Hi Adam,
Sorry I am not going to criticize your blog. Your blog and book has helped me tremendously. I am scheduled for valve replacement this Friday, Aug.01, 2008. All the emotions you addressed in your book are the same feelings I have had since I found out I needed this surgery. They say my valve is severly calcified but I am asymptomitic ( I exercized 3 days at the gym and 5 days on my treadmill) and I did question why was this necessary. My problem was found during a normal (every 2 year) echo test. I had heart surgery at the age of 10 for coartation of the Aorta. 12 years ago I was diagnosed with mitral valve prolapse but that is not a problem. The valve problem comes from being born with only 2 leaflets.
With only two days to go I worry if the surgeon is the right one and if I am making the right choice in choosing the pig valve. I have done research on both subjects but it is my heart and I can not change my mind after the fact. Any way thanks for all the info. I was able to ask questions I did not think about before and I made my surgeon’s P.A. a little crazy. My only regret is not finding out about your book until just a few weeks ago.